Validity and Reliability of Self-reported Diabetes in the Atherosclerosis Risk in Communities Study
Open Access
- 25 September 2012
- journal article
- research article
- Published by Oxford University Press (OUP) in American Journal of Epidemiology
- Vol. 176 (8), 738-743
- https://doi.org/10.1093/aje/kws156
Abstract
The objective of this study was to assess the validity of prevalent and incident self-reported diabetes compared with multiple reference definitions and to assess the reliability (repeatability) of a self-reported diagnosis of diabetes. Data from 10,321 participants in the Atherosclerosis Risk in Communities (ARIC) Study who attended visit 4 (1996–1998) were analyzed. Prevalent self-reported diabetes was compared with reference definitions defined by fasting glucose and medication use obtained at visit 4. Incident self-reported diabetes was assessed during annual follow-up telephone calls and was compared with reference definitions defined by fasting glucose, hemoglobin A1c, and medication use obtained during an in-person visit attended by a subsample of participants (n = 1,738) in 2004–2005. The sensitivity of prevalent self-reported diabetes ranged from 58.5% to 70.8%, and specificity ranged from 95.6% to 96.8%, depending on the reference definition. Similarly, the sensitivity of incident self-reported diabetes ranged from 55.9% to 80.4%, and specificity ranged from 84.5% to 90.6%. Percent positive agreement of self-reported diabetes during 9 years of repeat assessments ranged from 92.7% to 95.4%. Both prevalent self-reported diabetes and incident self-reported diabetes were 84%–97% specific and 55%–80% sensitive as compared with reference definitions using glucose and medication criteria. Self-reported diabetes was >92% reliable over time.Keywords
This publication has 18 references indexed in Scilit:
- Strength of Association for Incident Diabetes Risk Factors According to Diabetes Case Definitions: The Atherosclerosis Risk in Communities StudyAmerican Journal of Epidemiology, 2012
- Diagnosis and Classification of Diabetes MellitusDiabetes Care, 2010
- Correlates of Carotid Plaque Presence and Composition as Measured by MRICirculation: Cardiovascular Imaging, 2009
- Validez del diagnóstico referido de diabetes, hipertensión e hiperlipemia en población adulta española. Resultados del estudio DINORevista Espanola de Cardiologia, 2009
- Validade do diabetes auto-referido e seus determinantes: evidências do projeto BambuíRevista de Saúde Pública, 2007
- Agreement between self-report questionnaires and medical record data was substantial for diabetes, hypertension, myocardial infarction and stroke but not for heart failureJournal of Clinical Epidemiology, 2004
- Evaluating the quality of self-reports of hypertension and diabetesJournal of Clinical Epidemiology, 2003
- Body Weight Patterns From 20 to 49 Years of Age and Subsequent Risk for Diabetes MellitusArchives of Internal Medicine, 1999
- Self-reports and general practitioner information on the presence of chronic diseases in community dwelling elderlyJournal of Clinical Epidemiology, 1996
- Prospective study of cigarette smoking, alcohol use, and the risk of diabetes in menBMJ, 1995