Providing care to a child with cancer: a longitudinal study on the course, predictors, and impact of caregiving stress during the first year after diagnosis
- 12 August 2014
- journal article
- research article
- Published by Wiley in Psycho‐Oncology
- Vol. 24 (3), 318-324
- https://doi.org/10.1002/pon.3652
Abstract
Objective This study investigated the course, predictors, and impact of caregiving stress on the functioning of primary caregivers of children with cancer during the first year after a child's cancer diagnosis. Methods Primary caregivers (N = 95, 100% mother, 86% response rate) of consecutive newly diagnosed paediatric cancer patients (0–18 years) completed measures of caregiving stress, depressive symptoms, anxiety, and self‐reported health at diagnosis, and 3, 6, and 12 months thereafter. Results Results indicated a significant decrease in caregiving stress (especially during the first 3 months after diagnosis). Caregiving stress was predicted by single marital status and the ill child being the mother's only child. Multilevel analyses, controlled for socio‐demographic and medical covariates, showed that, over time, the decline in caregiving stress was accompanied by a reduction in depressive symptoms and anxiety. The amount of variance explained by caregiving stress was 53% for depressive symptoms, 47% for anxiety, and 3% for self‐reported health. Conclusions The present study suggests that caregiving stress is an important factor in understanding parental adjustment to childhood cancer. This offers possibilities for developing interventions aimed at preventing caregiving stress, and strengthening mothers' confidence in their ability to provide good care. Copyright © 2014 John Wiley & Sons, Ltd.This publication has 38 references indexed in Scilit:
- Cancer-Related Sources of Stress for Children With Cancer and Their ParentsJournal of Pediatric Psychology, 2011
- Paediatric parenting stress in inflammatory bowel disease: application of the Pediatric Inventory for ParentsChild: Care, Health and Development, 2011
- Parental adjustment to the completion of their child's cancer treatmentPediatric Blood & Cancer, 2010
- Review of the literature on the effects of caring for a patient with cancerPsycho‐Oncology, 2009
- Gender differences and simililarities in the experience of parenting a child with a health problem: current state of knowledgeJournal of Child Health Care, 2007
- Developing a literature base to understand the caregiving experience of parents of children with cancer: a systematic review of factors related to parental health and well-beingSupportive Care in Cancer, 2007
- The Spielberger State-Trait Anxiety Inventory (STAI): the state scale in detecting mental disorders in geriatric patientsInternational Journal of Geriatric Psychiatry, 2005
- The development of a six‐item short‐form of the state scale of the Spielberger State—Trait Anxiety Inventory (STAI)British Journal of Clinical Psychology, 1992
- What diagnosis does not tell: The case for a noncategorical approach to chronic illness in childhoodSocial Science & Medicine (1982), 1989
- The CES-D ScaleApplied Psychological Measurement, 1977