Developing a literature base to understand the caregiving experience of parents of children with cancer: a systematic review of factors related to parental health and well-being
- 28 March 2007
- journal article
- review article
- Published by Springer Science and Business Media LLC in Supportive Care in Cancer
- Vol. 15 (7), 807-818
- https://doi.org/10.1007/s00520-007-0243-x
Abstract
This paper describes a literature review conducted to identify important factors that have been investigated as explanations of variability in the health and well-being of parents of children with cancer. Our purpose was to build a literature base that could be used to guide and direct future research. Medline, Cinahl, EMBASE, PsycINFO, and Sociological Abstracts were searched from 1980 to 2005 using the keywords neoplasms; child(ren) aged 0–18 years; parent(s), caregiver(s), mother(s), or father(s). For papers that met the study inclusion criteria, sample characteristics and information about factors related to caregiver health, or the relationship between such factors, were extracted. The findings were organized according to the six main constructs that form the caregiving process and caregiver burden model: background/context variables; child characteristics; caregiver strain; self-perception; coping factors; and caregiver physical and psychological health. Articles meeting the inclusion criteria totaled 57. We found substantial research showing that certain child characteristics (e.g., child behavior; time since diagnosis) and indicators of coping (e.g., family cohesion, social support, stress management) are related to parental psychological health. Other aspects of the caregiving process (e.g., parental self-perception, family-centered care, and physical health) have received less research attention. Various limitations and gaps in the current literature were identified in our review. Future research to understand the complex interrelationships between factors involved in the caregiving process should examine hypotheses that are guided by a theoretical framework and tested using advanced statistical techniques.This publication has 86 references indexed in Scilit:
- Stress and weight gain in parents of cancer patientsInternational Journal of Obesity, 2005
- Adjustment of children with cancer and their caregivers: Moderating influences of family functioning.Families, Systems, & Health, 2003
- Uncertainty, anxiety, and symptoms of posttraumatic stress in parents of children recently diagnosed with cancerJournal of Pediatric Oncology Nursing, 2002
- Parents' Emotional Reactions Related to Different Prospects for the Survival of Their Children with CancerJournal of Psychosocial Oncology, 1997
- PARENTS‘ PERCEPTIONS OF CAREGIVING: DEVELOPMENT AND VALIDATION OF A MEASURE OF PROCESSESDevelopmental Medicine and Child Neurology, 1996
- Secondary control strategies used by parents of children with cancerPsycho‐Oncology, 1996
- Maternal Depression, Assessment Methods, and Physical Symptoms Affect Estimates of Depressive Symptomatology Among Children with CancerJournal of Pediatric Psychology, 1992
- Family Resources as Resistance Factors for Psychological Maladjustment in Chronically Ill and Handicapped ChildrenJournal of Pediatric Psychology, 1989
- Longitudinal Evaluations of Psychological Distress in Parents of Children with MalignanciesActa Paediatrica, 1986
- Predictors of Psychological Adjustment in Mothers of Children with CancerJournal of Psychosocial Oncology, 1985