Eye tracking communication devices in amyotrophic lateral sclerosis: Impact on disability and quality of life
- 8 July 2013
- journal article
- Published by Informa UK Limited in Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration
- Vol. 14 (7), 546-552
- https://doi.org/10.3109/21678421.2013.803576
Abstract
People with amyotrophic lateral sclerosis (PwALS) show progressive loss of voluntary muscle strength. In advanced disease, motor and phonatory impairments seriously hinder the patient's interpersonal communication. High-tech devices such as eye tracking communication devices (ETCDs) are used to aid communication in the later stages of ALS. We sought to evaluate the effect of ETCDs on patient disability, quality of life (QoL), and user satisfaction, in a group of 35 regular ETCD users in late-stage ALS with tetraplegia and anarthria. The following scales were administered: 1) the Individually Prioritized Problem Assessment (IPPA) scale, in three conditions: without device, with ETCD and, when applicable, with an Eye Transfer (ETRAN) board; 2) the Psychosocial Impact of Assistive Devices Scale (PIADS); and 3) the Quebec User Evaluation of Satisfaction with Assistive Technology (QUEST 2.0). With ETRAN, IPPA showed an increase in communicative abilities with respect to the condition without device, but ETCD produced a further significant increase. PIADS evidenced a large increase of QoL, and QUEST 2.0 showed high user satisfaction with ETCD use. In conclusion, ETCDs should be considered in late-stage ALS with tetraplegia and anarthria, since in these patients they can reduce communication disability and improve QoL.Keywords
This publication has 23 references indexed in Scilit:
- Augmentative and Alternative Communication for People with Progressive Neuromuscular DiseasePhysical Medicine and Rehabilitation Clinics of North America, 2012
- Access Interface StrategiesAssistive Technology, 2012
- Communication Support for People with ALSNeurology Research International, 2011
- Practice Parameter update: The care of the patient with amyotrophic lateral sclerosis: Drug, nutritional, and respiratory therapies (an evidence-based review)Neurology, 2009
- Dysarthria in amyotrophic lateral sclerosis: A reviewAmyotrophic Lateral Sclerosis, 2008
- Rating the severity of ALS by caregivers over the telephone using the ALSFRS‐RAmyotrophic Lateral Sclerosis, 2005
- Communication effectiveness of individuals with amyotrophic lateral sclerosisJournal of Communication Disorders, 2004
- Amyotrophic Lateral SclerosisNew England Journal of Medicine, 2001
- The ALSFRS-R: a revised ALS functional rating scale that incorporates assessments of respiratory functionJournal of the Neurological Sciences, 1999
- Spasmodic dysphonia symptoms as initial presentation of amyotrophic lateral sclerosisJournal of Voice, 1996