Understanding and supporting women with polycystic ovary syndrome: a qualitative study in an ethnically diverse UK sample
Open Access
- 1 July 2017
- journal article
- research article
- Published by Bioscientifica in Endocrine Connections
- Vol. 6 (5), 323-330
- https://doi.org/10.1530/ec-17-0053
Abstract
Objective Polycystic ovary syndrome (PCOS) is a lifelong condition. Its symptoms have been linked with psychological consequences, but less attention has been given to the daily implications of living with PCOS. We aimed to explore women’s experiences living with PCOS, and the potential acceptability of group education sessions for this target group. Methods Women with PCOS were recruited from an ethnically diverse UK community. Twelve semi-structured interviews were conducted. Analysis was underpinned by the constant comparative approach and involved the identification and exploration of key themes. Results Participants reported a range of symptoms linked with PCOS, including problems relating to menstruation and weight difficulties. Hirsutism was reported as the most distressing symptom. Emergent themes included perceptions about symptoms and delays in receiving a diagnosis; psychological distress; practical implications of living with the condition; coping with PCOS and perceived support needs. Some findings were specific to cultural backgrounds. Participants were supportive of the idea of group education for women with PCOS and suggested a need to provide education within the community and health care providers. Discussion Women with PCOS experience high psychological distress and difficulties with coping with their condition. Suggested strategies to reduce the negative psychological impact include education at various levels.Keywords
This publication has 21 references indexed in Scilit:
- Diabetes and cardiovascular events in women with polycystic ovary syndrome: a 20‐year retrospective cohort studyClinical Endocrinology, 2012
- Mood and anxiety disorders in women with PCOSSteroids, 2012
- Emotional Needs of Teens With Polycystic Ovary SyndromeJournal of Pediatric Nursing, 2012
- Consensus on women’s health aspects of polycystic ovary syndrome (PCOS): the Amsterdam ESHRE/ASRM-Sponsored 3rd PCOS Consensus Workshop GroupFertility and Sterility, 2012
- Anxiety and depression in polycystic ovary syndrome: a systematic review and meta-analysisHuman Reproduction, 2011
- Managing Polycystic Ovary SyndromeJournal of Holistic Nursing, 2011
- Anxiety and depression in polycystic ovary syndrome: a comprehensive investigationFertility and Sterility, 2010
- The prevalence of polycystic ovary syndrome in a community sample assessed under contrasting diagnostic criteriaHuman Reproduction, 2009
- Quality of life and psychological morbidity in women with polycystic ovary syndrome: body mass index, age and the provision of patient information are significant modifiersClinical Endocrinology, 2007
- The Lived Experience of Women Diagnosed With Polycystic Ovary SyndromeJournal of Obstetric, Gynecologic & Neonatal Nursing, 2006