A systematic review of instruments related to family caregivers of palliative care patients
- 6 July 2010
- journal article
- review article
- Published by SAGE Publications in Palliative Medicine
- Vol. 24 (7), 656-668
- https://doi.org/10.1177/0269216310373167
Abstract
Support for family caregivers is a core function of palliative care. However, there is a lack of consistency in the way needs are assessed, few longitudinal studies to examine the impact of caregiving, and a dearth of evidence-based interventions. In order to help redress this situation, identification of suitable instruments to examine the caregiving experience and the effectiveness of interventions is required. A systematic literature review was undertaken incorporating representatives of the European Association for Palliative Care’s International Palliative Care Family Caregiver Research Collaboration and Family Carer Taskforce. The aim of the review was to identify articles that described the use of instruments administered to family caregivers of palliative care patients (pre and post-bereavement). Fourteen of the 62 instruments targeted satisfaction with service delivery and less than half were developed specifically for the palliative care context. In approximately 25% of articles psychometric data were not reported. Where psychometric results were reported, validity data were reported in less than half (42%) of these cases. While a considerable variety of instruments have been administered to family caregivers, the validity of some of these requires further consideration. We recommend that others be judicious before developing new instruments for this population.Keywords
This publication has 68 references indexed in Scilit:
- Psychometric Properties of the Hospital Anxiety and Depression Scale in Family Caregivers of Palliative Care PatientsJournal of Pain and Symptom Management, 2009
- Factors of complicated grief pre‐death in caregivers of cancer patientsPsycho‐Oncology, 2007
- QOLLTI-F: measuring family carer quality of lifePalliative Medicine, 2006
- Global quality of life in primary caregivers of patients with cancer in palliative phase staying at homeSupportive Care in Cancer, 2006
- The caregiver reaction assessment: psychometrics, and temporal stability in primary caregivers of Norwegian cancer patients in late palliative phasePsycho‐Oncology, 2005
- Development of a Brief Assessment Scale for Caregivers of the Medically IllJournal of Pain and Symptom Management, 2005
- The MOS 36-ltem Short-Form Health Survey (SF-36)Medical Care, 1992
- Relationship of hope, coping styles, concurrent losses, and setting to grief resolution in the Elderly Widow(er)Research in Nursing & Health, 1990
- The Hospital Anxiety and Depression ScaleActa Psychiatrica Scandinavica, 1983
- The CES-D ScaleApplied Psychological Measurement, 1977