Global quality of life in primary caregivers of patients with cancer in palliative phase staying at home
- 8 March 2006
- journal article
- research article
- Published by Springer Science and Business Media LLC in Supportive Care in Cancer
- Vol. 14 (9), 943-951
- https://doi.org/10.1007/s00520-006-0026-9
Abstract
Goal of work Research on global quality of life (GQOL) in primary caregivers (PCGs) of cancer patients is limited. This study measured significant domains of GQOL in PCGs and their association with the patients’ disease trajectory and the PCGs’ background and life situation. This study also explored differences in their GQOL compared to a normative sample from the general population (NORM).Patient and methods In a cross-sectional design, 71 PCGs (aged ≥50 years) of cancer patients in palliative phase rated their GQOL by the Quality of Life Scale (QOLS) and provided information concerning demography, experienced social support, and caring situation. Associations between the QOLS scores and variables of the patients’ medical history were assessed, and comparisons of QOLS scores were made between the PCGs and age- and gender-adjusted NORM.Main results Long duration of the curative phase for patients and holding a job for PCGs were significantly associated with a favorable GQOL in PCGs. The mean total GQOL score did not differ significantly between the PCGs and NORM groups, though subanalyses revealed significantly more favorable mean score of the relational domain in PCGs compared to NORM.Conclusions GQOL in PCGs of cancer patients in palliative phase staying at home was as good as that of the NORM. For PCGs not employed or caring for patients with a short curative phase, getting some recreation could be of importance for improvement of GQOL.This publication has 33 references indexed in Scilit:
- The caregiver reaction assessment: psychometrics, and temporal stability in primary caregivers of Norwegian cancer patients in late palliative phasePsycho‐Oncology, 2005
- A longitudinal study of palliative careCancer, 2005
- Family caregiver burden: results of a longitudinal study of breast cancer patients and their principal caregiversCMAJ : Canadian Medical Association Journal, 2004
- Family Support in Advanced CancerCA: A Cancer Journal for Clinicians, 2001
- Randomized controlled trial on the effect of pelvic floor muscle training on quality of life and sexual problems in genuine stress incontinent womenActa Obstetricia et Gynecologica Scandinavica, 2000
- Methodological approaches for assessing response shift in longitudinal health-related quality-of-life researchSocial Science & Medicine (1982), 1999
- Family Caregiver Quality of Life: Differences Between Curative and Palliative Cancer Treatment SettingsJournal of Pain and Symptom Management, 1999
- Needs of caregivers of clinic and hospice cancer patientsCancer Nursing, 1996
- The effect of chronic obstructive pulmonary disease on quality of lifeResearch in Nursing & Health, 1995
- A problem solving intervention for caregivers of cancer patientsSocial Science & Medicine (1982), 1995