An evaluation of palliative care contents in national dementia strategies in reference to the European Association for Palliative Care white paper
- 13 February 2015
- journal article
- research article
- Published by Cambridge University Press (CUP) in International Psychogeriatrics
- Vol. 27 (9), 1551-1561
- https://doi.org/10.1017/s1041610215000150
Abstract
Background: : Dementia involves a progressive decline in many functional areas. Policy and practice guidelines should cover the entire course of the disease from early detection to the end-of-life. The present study aimed to evaluate the contents of national dementia strategies with a focus on palliative care content.Methods: : We employed qualitative content analyses. Sixteen national dementia strategies from 14 countries were reviewed. Using open coding, the contents were compared to the domains and recommendations of the palliative care in dementia white paper of the European Association for Palliative Care (EAPC).Results: : Although palliative care was not explicitly referred to in eight of the 14 countries and only to a limited extent in three countries, a number of domains from the EAPC white paper were well represented, including “person-centered care, communication, and shared decision making”; “continuity of care”; and “family care and involvement.” Three countries that referred to palliative care did so explicitly, with two domains being well represented: “education of the health care team”; and “societal and ethical issues.” The strategies all lacked reference to the domain of “prognostication and timely recognition of dying” and to spiritual caregiving.Conclusions: : National dementia strategies cover part of the recent definition of palliative care in dementia, although they do not frequently label these references as “palliative care.” In view of the growing numbers of people dying with dementia, preparation for the last phase of life should be added to national strategies.Keywords
This publication has 8 references indexed in Scilit:
- Features of the Japanese national dementia strategy in comparison with international dementia policies: How should a national dementia policy interact with the public health‐ and social‐care systems?Alzheimer's & Dementia, 2013
- White paper defining optimal palliative care in older people with dementia: A Delphi study and recommendations from the European Association for Palliative CarePalliative Medicine, 2013
- Educating families about end-of-life care in advanced dementia: acceptability of a Canadian family booklet to nurses from Canada, France, and JapanInternational Journal of Palliative Nursing, 2013
- Translation and cross-cultural adaptation of a family booklet on comfort care in dementia: sensitive topics revised before implementationJournal of Medical Ethics, 2012
- End-of-life care for patients with dementia in the United States: institutional realitiesHealth Economics, Policy and Law, 2012
- Dying with Dementia: What We Know after More than a Decade of ResearchJournal of Alzheimer's Disease, 2010
- A matter of definition – key elements identified in a discourse analysis of definitions of palliative carePalliative Medicine, 2008
- International Differences in End-of-Life Attitudes in the Intensive Care UnitArchives of Internal Medicine, 2005