Educating families about end-of-life care in advanced dementia: acceptability of a Canadian family booklet to nurses from Canada, France, and Japan
- 1 February 2013
- journal article
- Published by Mark Allen Group in International Journal of Palliative Nursing
- Vol. 19 (2), 67-74
- https://doi.org/10.12968/ijpn.2013.19.2.67
Abstract
Background: The families of people with late-stage dementia need to be informed about the course of the dementia and the comfort/palliative care option. A booklet was written for that purpose and can be provided to family members by physicians and nurses. Methods: The acceptability of the booklet for nurses was tested in Canada (French and English version), France (French Canadian version) and Japan (translated and adapted version). Results: Overall, 188 nurses completed a survey questionnaire. The booklet was accepted best in Canada and less so in France and Japan. Despite regional variation, the majority of the nurses perceived the booklet as useful for families. The French and Japanese nurses also reported a greater need for palliative care education in advanced dementia. Conclusion: The booklet may help nurses educate families about end-of-life issues in dementia palliative care, but local adaptation of the booklet content and physician engagement are necessary.Keywords
This publication has 19 references indexed in Scilit:
- The Importance of Physician Presence in Nursing Homes for Residents with Dementia and PneumoniaJournal of the American Medical Directors Association, 2011
- Survival and Comfort After Treatment of Pneumonia in Advanced DementiaArchives of Internal Medicine, 2010
- Physicians' psychosocial barriers to different modes of withdrawal of life support in critical care: A qualitative study in JapanSocial Science & Medicine, 2010
- Healthcare Proxies of Nursing Home Residents with Advanced Dementia: Decisions They Confront and Their Satisfaction with Decision‐MakingJournal of the American Geriatrics Society, 2009
- Nurses’ Perceptions around Providing Palliative Care for Long-Term Care Residents with DementiaJournal of Palliative Care, 2007
- Physician Communication with Family Caregivers of Long‐Term Care Residents at the End of LifeJournal of the American Geriatrics Society, 2007
- Barriers to Providing Palliative Care and Priorities for Future Actions to Advance Palliative Care in Japan: A Nationwide Expert Opinion SurveyJournal of Palliative Medicine, 2007
- Preparedness for the Death of a Loved One and Mental Health in Bereaved Caregivers of Patients with Dementia: Findings from the REACH StudyJournal of Palliative Medicine, 2006
- End-of-life decision making in dementiaDementia, 2005
- End‐of‐Life Decision Making for Nursing Home Residents with DementiaJournal of Nursing Scholarship, 2000