The Conceptions of Care Among Family Caregivers of Persons Living With HIV/AIDS in Addis Ababa, Ethiopia
- 27 October 2008
- journal article
- research article
- Published by SAGE Publications in Journal of Transcultural Nursing
- Vol. 20 (1), 37-50
- https://doi.org/10.1177/1043659608322417
Abstract
This focused ethnographic study explores and describes the conceptions of care among family caregivers of people living with HIV/AIDS (PLWAs) in Addis Ababa, Ethiopia. Leininger's theory of culture care diversity and universality is the conceptual anchor of this ethnographic study. Using semistructured interviews and participant observation, 6 key informants and 12 general informants were interviewed in their home in Amharic language. Data were analyzed in Amharic using Leininger's phases of ethnonursing analysis for qualitative data and then translated to English. Four major themes representing family caregivers' conceptions of care were identified: nourishing the PLWA while struggling with poverty, maintenance of cleanliness and hygiene of the person and surroundings, comforting the PLWA, and sacrificing self to sustain the PLWA. Valuable data were gathered about the family caregivers' conceptions of care. Nurses can use this knowledge to design and provide culturally congruent care to family caregivers and PLWAs in the community.Keywords
This publication has 37 references indexed in Scilit:
- The Lived Experience of Sacrificing Something ImportantNursing Science Quarterly, 2006
- Physical and Psychosocial Health in Family Caregiving: A Comparison of AIDS and Cancer CaregiversPublic Health Nursing, 2004
- Sacrifice: an ethical dimension of caring that makes suffering meaningfulNursing Ethics, 2003
- Ethnography and reflexivity: emotions and feelings in fieldworkNurse Researcher, 2003
- Families and Self-Sacrifice: Alternative Models and Meanings for Family TheorySocial Forces, 2001
- HEALTH PROBLEMS OF LOW-INCOME FEMALE CAREGIVERS OF ADULTS WITH HIV/AIDSHealth Care for Women International, 1998
- Taking care: caregiving to persons with cancer and AIDSCancer Nursing, 1997
- Psychological distress among gay men supporting a lover or partner with AIDS: A pilot studyAIDS Care, 1995
- The prevalence of informal caregiving to persons with aids in the United States: Caregiver characteristics and their implicationsSocial Science & Medicine (1982), 1994
- Bereavement Experiences: Caring for a Partner with AIDSJournal of Community Health Nursing, 1992