Quality of life in children with Type 1 diabetes: a comparison of general and diabetes‐specific measures and support for a unitary diabetes quality‐of‐life construct
- 29 October 2008
- journal article
- research article
- Published by Wiley in Diabetic Medicine
- Vol. 25 (11), 1316-1323
- https://doi.org/10.1111/j.1464-5491.2008.02574.x
Abstract
Aims To assess the factor structure of the Pediatric Quality of Life Inventory (PedsQL) Diabetes Module and to compare the PedsQL general and diabetes‐specific quality of life (QOL) measures regarding psychometric properties and relations to relevant outcomes. Methods The instruments were completed by 447 children age 9 to 15.5 years with Type 1 diabetes > 1 year from four US paediatric diabetes clinics; parents completed the parallel parent‐proxy measures. Principal components factor analysis was used to examine the factor structure of the PedsQL diabetes module. Analyses of the generic and diabetes QOL measures included psychometric properties, parent–child correlations and correlations with depression, adherence and glycated haemoglobin (HbA1c). Results The factor structure of the PedsQL diabetes module did not support the original five subscales. Both one‐ and two‐factor models were supported; however, parallel parent and child subscales did not emerge. While the generic and diabetes‐specific measures of QOL were moderately to highly correlated with each other, the constructs were differentially associated with relevant diabetes outcomes. Generic QOL was more highly associated with depression than diabetes QOL. Conversely, diabetes QOL was more highly associated with adherence and HbA1c, although this was seen to a greater extent for parent‐proxy report than for child report. Conclusions Factor analysis of the PedsQL diabetes module supports the use of a total diabetes QOL score. Findings regarding the associations of the generic and diabetes modules with diabetes outcomes underscore the unique contribution provided by both generic and diabetes QOL.Keywords
This publication has 22 references indexed in Scilit:
- Insulin Pump Therapy and Health-Related Quality of Life in Children and Adolescents with Type 1 DiabetesJournal of Pediatric Psychology, 2005
- General Quality of Life in Youth With Type 1 DiabetesDiabetes Care, 2003
- Quality of Life in School-Aged Children With Type 1 Diabetes on Intensive Treatment and Their ParentsThe Diabetes Educator, 2003
- The PedsQL™ in Type 1 and Type 2 DiabetesDiabetes Care, 2003
- Good Metabolic Control Is Associated With Better Quality of Life in 2,101 Adolescents With Type 1 DiabetesDiabetes Care, 2001
- PedsQL™ 4.0: Reliability and Validity of the Pediatric Quality of Life Inventory™ Version 4.0 Generic Core Scales in Healthy and Patient PopulationsMedical Care, 2001
- Validation of a structured interview for the assessment of diabetes self-management.Diabetes Care, 2000
- Measuring Quality of Care for Vulnerable Children: Challenges and Conceptualization of a Pediatric Outcome Measure of QualityAmerican Journal of Medical Quality, 2000
- Parental perception of the quality of life among children with epilepsy or diabetes with a new assessment questionnaireQuality of Life Research, 2000
- Continuous subcutaneous insulin infusion. A new way to lower risk of severe hypoglycemia, improve metabolic control, and enhance coping in adolescents with type 1 diabetes.Diabetes Care, 1999