Individualized assessment of quality of life in idiopathic Parkinson's disease
- 19 September 2006
- journal article
- research article
- Published by Wiley in Movement Disorders
- Vol. 21 (11), 1929-1934
- https://doi.org/10.1002/mds.21099
Abstract
The purpose of this study was to assess quality of life (QoL) of patients with idiopathic Parkinson's disease (IPD). The Parkinson's Disease Questionnaire (PDQ‐39) was compared with an individualized QoL tool: the Schedule for Evaluation of Individual Quality of Life Direct Weighting (SEIQoL‐DW). One hundred twenty‐three patients underwent interviews using these tools, together with the Mini Mental State examination, Beck Depression Inventory, a qualitative pain assessment, and the Palliative Care Assessment tool (for symptoms). The SEIQoL‐DW was well tolerated and demonstrated that QoL not only was broad and highly individualistic but also was determined more by psychosocial than physical issues. Of the 87 domains nominated by patients, the most common were family (87.8%), health (52.8%), leisure activities (36.6%), marriage (35%), and friends (30.9%). The SEIQoL index score was predicted by depression but not by disease stage. However, the PDQ‐39 was predicted by disease stage, the number of symptoms, and depression. Direct comparison of the tools confirmed that the SEIQoL index score was predicted by the PDQ‐39 domains of social support, cognitive impairment, and emotion. The use of the SEIQoL‐DW challenges current thinking within IPD research regarding QoL and its assessment using the PDQ‐39. © 2006 Movement Disorder SocietyKeywords
This publication has 33 references indexed in Scilit:
- Health related quality of life in Parkinson's disease: a systematic review of disease specific instrumentsJournal of Neurology, Neurosurgery & Psychiatry, 2002
- Factors impacting on quality of life in Parkinson's disease: Results from an international surveyMovement Disorders, 2002
- Linking clinical variables to health-related quality of life in Parkinson's diseaseParkinsonism & Related Disorders, 2002
- Health related quality of life in Parkinson's disease: a prospective longitudinal studyJournal of Neurology, Neurosurgery & Psychiatry, 2000
- Measuring the impact of Parkinson's disease with the Parkinson's Disease Quality of Life questionnaireAge and Ageing, 1999
- Development of a direct weighting procedure for quality of life domainsQuality of Life Research, 1997
- A new short form individual quality of life measure (SEIQoL-DW): application in a cohort of individuals with HIV/AIDSBMJ, 1996
- Validating a quality of life rating scale for idiopathic parkinsonism: Parkinson's Impact Scale (PIMS)Parkinsonism & Related Disorders, 1996
- The development and validation of a short measure of functioning and well being for individuals with Parkinson's diseaseQuality of Life Research, 1995
- Assessing the quality of life of the individual: the SEIQoL with a healthy and a gastroenterology unit populationPsychological Medicine, 1991