Sickle Cell Disease: A Question of Equity and Quality
- 1 May 2006
- journal article
- Published by American Academy of Pediatrics (AAP)
- Vol. 117 (5), 1763-1770
- https://doi.org/10.1542/peds.2005-1611
Abstract
Thirty years ago, the first major federal legislation concerning sickle cell disease treatment was passed, resulting in the development of comprehensive sickle cell centers. We are now at another watershed moment in the treatment of this illness with the passage in October 2004 of the Sickle Cell Treatment Act, designed to substantially expand specialized sickle cell treatment programs. This legislation offers a remarkable opportunity to significantly improve health outcomes for individuals with sickle cell disease if it is implemented with a specific focus on the distinct but related issues of equity and quality. Despite major advances in sickle cell disease treatment that have occurred over the past 3 decades, important gaps exist both in the equity of government and private philanthropic support for research and in the uniform provision of high quality clinical care. This article assesses the current gaps in funding support and in the implementation of improvements in clinical care in order to suggest strategies for making optimal use of the opportunity that the new legislation presents to improve the health of all individuals affected by this disease.Keywords
This publication has 24 references indexed in Scilit:
- The Transformation Of Child Health In The United StatesHealth Affairs, 2004
- Declining stroke rates in Californian children with sickle cell diseasePublished by American Society of Hematology ,2004
- Survival of children with sickle cell diseaseBlood, 2004
- Managing sickle cell diseaseBMJ, 2003
- The NIH RoadmapScience, 2003
- A User’s Manual For The IOM’s ‘Quality Chasm’ ReportHealth Affairs, 2002
- Health Supervision for Children with Sickle Cell DiseasePediatrics, 2002
- Effect of Hydroxyurea on the Frequency of Painful Crises in Sickle Cell AnemiaNew England Journal of Medicine, 1995
- Prophylaxis with Oral Penicillin in Children with Sickle Cell AnemiaNew England Journal of Medicine, 1986
- Health care priority and sickle cell anemiaPublished by American Medical Association (AMA) ,1970