What to tell dementia caregivers—the rule of threes
- 31 March 2003
- journal article
- research article
- Published by Wiley in International Journal of Geriatric Psychiatry
- Vol. 18 (4), 313-317
- https://doi.org/10.1002/gps.828
Abstract
Objectives To determine and prioritise what information dementia caregivers wish to know at the time of diagnosis and later on in the illness, and in what form this information should be presented. Method 100 carers were recruited from community mental health teams (CMHT) and a memory clinic (MC). A semi-structured Carer Interview was administered covering possible symptoms and management. Results Carers requested as much information as possible. There was no significant difference between CMHTs and the MC. After carers prioritised the information they wished to receive, we proposed a ‘rule of threes’. At diagnosis, carers want information about what dementia is, medications available and behavioural and psychiatric symptoms of dementia. In an early follow-up appointment, they want information about services, the course of the illness and what to do in a crisis. In a later follow-up appointment, they want information about support groups, benefits, and financial and legal issues. At a later stage, they want information about psychological therapies, the effects of the illness on carers and complementary treatments. Most carers wish to receive information from a health professional, backed up by written information. Conclusions The ‘rule of threes’ enables health professionals to make informed decisions about primacy of information and strategies to prevent carers becoming overloaded. Information should also be provided in written form and from support groups. Copyright © 2003 John Wiley & Sons, Ltd.Keywords
This publication has 9 references indexed in Scilit:
- Providing education about Alzheimer's diseaseAging & Mental Health, 2001
- Psychological Morbidity in Caregivers Is Associated with Depression in Patients with DementiaAlzheimer Disease & Associated Disorders, 1998
- Practice guideline for the treatment of patients with schizophrenia. American Psychiatric AssociationAmerican Journal of Psychiatry, 1997
- CARERS' KNOWLEDGE OF DEMENTIA AND THEIR EXPRESSED CONCERNSInternational Journal of Geriatric Psychiatry, 1997
- Spouse Caregivers' Attitudes Toward Obtaining a Diagnosis of a Dementing IllnessJournal of the American Geriatrics Society, 1996
- Behavioural and instrumental stressors in Dementia (BISID): refocussing the assessment of caregiver need in dementiaJournal of Psychiatric and Mental Health Nursing, 1996
- User expectations of a memory clinicClinical Psychology Forum, 1995
- A Survey of Dementia Carers: Doctors' Communications, Problem Behaviours and Institutional CareAustralian & New Zealand Journal of Psychiatry, 1990
- “Mini-mental state”: A practical method for grading the cognitive state of patients for the clinicianJournal of Psychiatric Research, 1975