A Discourse of Relationships in Bioethics: Patient Autonomy and End‐of‐Life Decision Making among Elderly Korean Americans
- 1 December 1998
- journal article
- research article
- Published by Wiley in Medical Anthropology Quarterly
- Vol. 12 (4), 403-423
- https://doi.org/10.1525/maq.1998.12.4.403
Abstract
A two‐year, multidisciplinary study (N = 800) was conducted on attitudes about end‐of‐life decision making among elderly individuals in four ethnic groups (African American, European American, Korean American, and Mexican American). On a quantitative survey, Korean Americans reported negative attitudes about the use of life‐sustaining technology for themselves but positive attitudes about its use in general. This article reports on an interview with a 79‐year‐old typical Korean American respondent to explain the contradiction in the survey data. Expectations among elderly Korean Americans include protecting family members with a life‐threatening illness from being informed of their diagnosis and prognosis, and doing everything to keep them alive. Two conclusions, one substantive and the other methodological, are drawn: First, the bioethics discourse on individual rights (patientautonomy) is insufficient to explain the preferences of many Korean Americans and must be supplemented with a discourse on relationships. Second, the rigorous use of qualitative, narrative methods clarifies quantitative data and should not be dismissed as “anecdotal.” fbioethics, endoflife decision making, ethnicity, Asian Americans, qualitative methods, narrative]Keywords
This publication has 51 references indexed in Scilit:
- MSL — Medicine as a Second LanguageThe New England Journal of Medicine, 2005
- Activists and delegators: Elderly patients' preferences about control at the end of lifeSocial Science & Medicine (1982), 1995
- Anthropology, Bioethics, and Medicine: A Provocative TrilogyMedical Anthropology Quarterly, 1994
- Intercultural Reasoning: The Challenge for International BioethicsCambridge Quarterly of Healthcare Ethics, 1994
- Beyond assimilation and pluralism; syncretic sociocultural adaptation of Korean immigrants in the USEthnic and Racial Studies, 1993
- Linking Qualitative and Quantitative Methods: Integrating Cultural Factors into Public HealthQualitative Health Research, 1993
- Factors associated with veterans' decisions about living willsArchives of Internal Medicine, 1992
- Advance Directives for Medical Care — A Case for Greater UseThe New England Journal of Medicine, 1991
- The Medical Directive. A new comprehensive advance care documentJAMA, 1989