The Cystic Fibrosis Foundation Patient Registry as a tool for use in quality improvement
Open Access
- 17 January 2014
- journal article
- review article
- Published by BMJ in BMJ Quality & Safety
- Vol. 23 (Suppl 1), i9-i14
- https://doi.org/10.1136/bmjqs-2013-002378
Abstract
Recognising the critical role of data collection and measurement of outcomes to better understand the natural history of CF, the CFF created a patient registry in 1966, the CFF Patient Registry (CFFPR).2 The CFFPR has evolved over the years from a few demographic variables including vital status to a comprehensive database that gives healthcare providers, researchers, policy makers and change agents data to support epidemiological and clinical research as well as efforts to improve quality of care.Keywords
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