Reconfiguring Social Value in Health Research Through the Lens of Liminality
Open Access
- 6 January 2017
- Vol. 31 (2), 87-96
- https://doi.org/10.1111/bioe.12324
Abstract
Despite the growing importance of social value' as a central feature of research ethics, the term remains both conceptually vague and to a certain extent operationally rigid. And yet, perhaps because the rhetorical appeal of social value appears immediate and self-evident, the concept has not been put to rigorous investigation in terms of its definition, strength, function, and scope. In this article, we discuss how the anthropological concept of liminality can illuminate social value and differentiate and reconfigure its variegated approaches. Employing liminality as a heuristic encourages a reassessment of how we understand the mobilization of social value' in bioethics. We argue that social value as seen through the lens of liminality can provide greater clarity of its function and scope for health research. Building on calls to understand social value as a dynamic, rather than a static, concept, we emphasize the need to appraise social value iteratively throughout the entire research as something that transforms over multiple times and across multiple spaces occupied by a range of actors.Keywords
Funding Information
- Wellcome Trust (No. WT103360MA)
This publication has 13 references indexed in Scilit:
- Lessons from the Residual Newborn Screening Dried Blood Sample LitigationJournal of Law, Medicine & Ethics, 2015
- The Social Value Requirement ReconsideredBioethics, 2014
- The social value of clinical researchBMC Medical Ethics, 2014
- The Social Value of Knowledge and International Clinical ResearchDeveloping World Bioethics, 2013
- A Non-Paternalistic Model of Research Ethics and Oversight: Assessing the Benefits of Prospective ReviewJournal of Law, Medicine & Ethics, 2012
- Treat donors as partners in biobank researchNature, 2011
- Reflexive governance in biobanking: on the value of policy led approaches and the need to recognise the limits of lawHuman Genetics, 2011
- INTRODUCTIONJournal of Cultural Economy, 2011
- Quality of Life and Rare DiseasesAdvances in experimental medicine and biology, 2010
- What Makes Clinical Research in Developing Countries Ethical? The Benchmarks of Ethical ResearchThe Journal of Infectious Diseases, 2004