Representations of people with dementia – subaltern, person, citizen
- 16 August 2010
- journal article
- research article
- Published by Wiley in Nursing Inquiry
- Vol. 17 (3), 240-247
- https://doi.org/10.1111/j.1440-1800.2009.00475.x
Abstract
This study traces shifts in health professional representations of people with dementia. The concepts of subaltern, personhood and citizenship are used to draw attention to issues around visibility, voice and inclusion. Professional discourses and practices draw upon, and are shaped by historical and contemporary representations. Until recently, people with dementia were subaltern in nursing and medical discourses; marginalised and silenced. The incorporation of contemporary representations foregrounding personhood and citizenship into health professional accounts provide space for transformative styles of care. Privileging personhood centralises the person with dementia in social networks, focusing on their experiences and relationships. Respecting citizenship involves challenging discrimination and stigma: nursing from a rights-based approach necessitates listening and being responsive to the needs of the person with dementia. Incorporating contemporary representations in health professional practice requires the discarding of the historically dominant elite and authoritarian accounts of dementia still apparent in some nursing texts along with, perhaps, the historically burdened term of dementia itself.Keywords
This publication has 16 references indexed in Scilit:
- Achieving Care and Social Justice for People With DementiaNursing Ethics, 2008
- Negotiating ethics in dementia careDementia, 2006
- Finding the balance: Living with memory lossInternational Journal of Nursing Practice, 2005
- Re-thinking representations, re-writing nursing texts: possibilities through feminist and Foucauldian thoughtJournal of Advanced Nursing, 2001
- Is It Time to Retire the Term "Dementia"?The Journal of Neuropsychiatry and Clinical Neurosciences, 2000
- The experience of dementiaAging & Mental Health, 1997
- The Perspective of the Patient with Alzheimer's Disease: A Neglected Dimension of Dementia ResearchThe Gerontologist, 1993
- Alzheimer's disease: A conceptual historyInternational Journal of Geriatric Psychiatry, 1990
- The Dialectics of Dementia: With Particular Reference to Alzheimer's DiseaseAgeing and Society, 1990
- Brain, Mind and Dementia: With Particular Reference to Alzheimer's DiseaseAgeing and Society, 1989