Identification of health-related quality of life (HRQOL) issues relevant to individuals with Huntington disease
- 16 March 2012
- journal article
- research article
- Published by SAGE Publications in Journal of Health Psychology
- Vol. 18 (2), 212-225
- https://doi.org/10.1177/1359105312438109
Abstract
This qualitative study explored health-related quality of life (HRQOL) in individuals with Huntington disease (HD). Sixteen focus groups were conducted ( n = 6 groups with symptomatic HD individuals; n = 5 with individuals who are at-risk or prodromal for HD; n = 3 non-clinical HD caregivers; n = 2 groups with HD clinicians). Qualitative analysis indicated that 28% of focus group comments were related to emotional health, 27% to social participation, 26% to physical health, 10% to cognitive health, and 9% to end of life issues. Findings highlight the importance of developing HD-targeted items to ensure sensitive assessment of HRQOL in HD research and clinical practice.Keywords
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