Reflecting the scope and work of palliative care teams today: an action research project to modernise a national minimum data set
- 14 November 2008
- journal article
- research article
- Published by SAGE Publications in Palliative Medicine
- Vol. 23 (1), 80-86
- https://doi.org/10.1177/0269216308098477
Abstract
The Minimum Data Set (MDS) for UK specialist palliative care services was developed in 1995 to provide annual data on palliative care services. Data collected is used for local and national purposes including service management, monitoring and audit, the commissioning of services and the development of national policy. The emergence of Payment by Results and HealthCare Resource Groups, which will have an impact on the funding processes, together with identified limitations of the current MDS resulted in a project to revise the MDS. An action research approach was used for the project and had distinctive phases including modifying the MDS, a pilot phase and an expert panel consultation. Modifications to all the sections of the MDS and changes to terminology were made. The action research approach enabled revisions made based upon a national consensus and met the changing provision of specialist palliative care services for the UK.This publication has 4 references indexed in Scilit:
- Use of action research in practice development unitsPractice Development in Health Care, 2007
- The development of palliative care knowledge in care homes for older people: the place of action researchPalliative Medicine, 2006
- Action Research: Living TheoryPublished by SAGE Publications ,2006
- Minimum dataset activity for hospice and hospital palliative care services in the UK 1997/98Palliative Medicine, 2000