Experiences with community engagement and informed consent in a genetic cohort study of severe childhood diseases in Kenya
Open Access
- 15 July 2010
- journal article
- Published by Springer Science and Business Media LLC in BMC Medical Ethics
- Vol. 11 (1), 13
- https://doi.org/10.1186/1472-6939-11-13
Abstract
No abstract availableKeywords
This publication has 56 references indexed in Scilit:
- Ethical Data Release in Genome-Wide Association Studies in Developing CountriesPLoS Medicine, 2009
- Impact of social stigma on the process of obtaining informed consent for genetic research on podoconiosis: a qualitative studyBMC Medical Ethics, 2009
- Ethics and the ethnography of medical research in AfricaSocial Science & Medicine, 2008
- Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, KenyaSocial Science & Medicine, 2008
- Taking social relationships seriously: Lessons learned from the informed consent practices of a vaccine trial on the Kenyan CoastSocial Science & Medicine, 2008
- Interventions to improve risk communication in clinical genetics: Systematic reviewPatient Education and Counseling, 2008
- Valid Consent for Genomic Epidemiology in Developing CountriesPLoS Medicine, 2007
- Effectiveness of Haemophilus influenzae Type b Conjugate Vaccine Introduction Into Routine Childhood Immunization in KenyaJama-Journal Of The American Medical Association, 2006
- The Effect of α +-Thalassaemia on the Incidence of Malaria and Other Diseases in Children Living on the Coast of KenyaPLoS Medicine, 2006
- Should donors be allowed to give broad consent to future biobank research?The Lancet Oncology, 2006