DOWN'S SYNDROME: IS DISSATISFACTION WITH DISCLOSURE OF DIAGNOSIS INEVITABLE?
- 1 February 1984
- journal article
- research article
- Published by Wiley in Developmental Medicine and Child Neurology
- Vol. 26 (1), 33-39
- https://doi.org/10.1111/j.1469-8749.1984.tb04403.x
Abstract
A survey of a representative sample of 62 parents of Down''s syndrome infants revealed a high level (58%) of dissatisfaction with the procedure for disclosing the diagnosist and with the immediate counseling services. From the replies and previous reports, a ''model procedure'' was set up in one Area Health Authority to test the hypothesis that dissatisfaction is inevitable. Parents receiving the ''model procedure'' reported 100% satisfaction, compared with 20% in a control group. Dissatisfaction is not inevitable but results directly from organizational difficulties in not providing the necessary service.This publication has 8 references indexed in Scilit:
- Mongolism: Telling the ParentsDevelopmental Medicine and Child Neurology, 2008
- Health visitor services for families with a Down's syndrome infantChild: Care, Health and Development, 1982
- Health visitor support for families with Down's syndrome infantsChild: Care, Health and Development, 1982
- PARENTS OF DOWN'S SYNDROME BABIES: THEIR EARLY NEEDS*Child: Care, Health and Development, 1977
- Down Syndrome: Informing the ParentsAmerican Journal of Diseases of Children, 1974
- The Birth of a Child with Down's Syndrome: A Medico-Social Study of Thirty-One Children and Their FamiliesScottish Medical Journal, 1973
- On Telling Parents of a Diagnosis of MongolismThe British Journal of Psychiatry, 1969
- Mongolism: When Should Parents be Told?BMJ, 1964