Assessment of the Quality of Life of Mothers of Children with Cerebral Palsy (Primary Caregivers)
- 1 September 2005
- journal article
- Published by SAGE Publications in Neurorehabilitation and Neural Repair
- Vol. 19 (3), 232-237
- https://doi.org/10.1177/1545968305278857
Abstract
Objectives. To evaluate the quality of life and psychological status in mothers of children with cerebral palsy (MCCPs) and to assess their relation with regard to the degree of their child’s disability. Design. Face-to-face interviews with MCCPs have been performed. A prospective, case control study. Setting. Physical therapy and rehabilitation training and research hospital. Subjects. 46 MCCPs and the mothers of 46 healthy children. Main Outcome Measure. Notthingam Health Profile-1, Beck Depression Inventory (BDI), and Beck Anxiety Inventory (BAI) scores in MCCPs and the mothers of healthy children. Gross Motor Function Classification System (GMFCS) was used for the children with cerebral palsy. Results. A significantly worsened (P = 0.001) quality of life was observed in MCCPs compared to the mothers of healthy children. BDI scores of the MCCPs were significantly higher than the mothers in the control group (P = 0.000). There were no significant differences in BAI scores between MCCPs and control mothers (P > 0.05). A positive correlation between the quality of life and BDI scores was noted in MCCPs (P = 0.000, r = 0.57), and no correlation was detected between the quality of life in MCCPs and the GMFCS levels of children with cerebral palsy (r = 0.012, P = 0.95). Conclusion. The quality of life in MCCPs is significantly lower than that of control mothers. Also, although the BAI scores were not significantly different between the groups, the BDI scores were poorer in MCCPs compared to those the control group.Keywords
This publication has 13 references indexed in Scilit:
- Validation of a Model of Gross Motor Function for Children With Cerebral PalsyPTJ: Physical Therapy & Rehabilitation Journal, 2000
- Predictors of Stress in Mothers of Children With Cerebral Palsy in BangladeshJournal of Pediatric Psychology, 2000
- The development and psychometric assessment of the Turkish version of the Nottingham Health ProfileInternational Journal of Rehabilitation Research, 2000
- Parenting stress among mothers of Malaysian children with cerebral palsy: predictors of child- and parent-related stressPaediatrics and International Child Health, 1998
- Development and reliability of a system to classify gross motor function in children with cerebral palsyDevelopmental Medicine and Child Neurology, 1997
- Poster 70 Medical secondary conditions among adults with cerebral palsy: Margaret A. Turk, MD (State University of New York Health Science Center, Syracuse, NY); Robert J. Weber, MD; Melinda Pavin, MPH; Cynthia A. Geremski, MPA; M. Craig Brown, PhDArchives of Physical Medicine and Rehabilitation, 1995
- Long‐term follow‐up study of cerebral palsy children and coping behaviour of parentsJournal of Advanced Nursing, 1990
- Parent Involvement in Physical TherapyJournal of Pediatric Orthopaedics, 1989
- Psychometric properties of the Beck Depression Inventory: Twenty-five years of evaluationClinical Psychology Review, 1988
- An inventory for measuring clinical anxiety: Psychometric properties.Journal of Consulting and Clinical Psychology, 1988