Quality Care for People with HIV/AIDS: Patients’ Perspectives
- 1 December 2004
- journal article
- research article
- Published by Informa UK Limited in HIV Research & Clinical Practice
- Vol. 5 (6), 406-415
- https://doi.org/10.1310/gq98-pgk7-0t97-47xh
Abstract
Purpose: To explore patient preferences to aid in the development of quality measures to assess quality of health care for people living with human immunodeficiency virus/acquired immunodeficiency disease (HIV/AIDS). Method: This study involved three 2-hour focus groups with 29 people living with HIV/AIDS in Portland, Oregon, and San Francisco, California. Eighteen quality of care indicators for HIV/AIDS health care were presented to each group and quantitative rankings were obtained. Aggregated weightings were used to rank and prioritize the quality measures for further exploration. Results: Participants identified 38 themes relevant to high-quality care for HIV/AIDS. Patients ranked the following candidate measures most important: effective relationship with provider, prevention of opportunistic infections, involvement in care and treatment decisions, being offered antiretroviral treatment, and access to health care services. We observed attitudinal differences among focus group participants that corresponded to gender and race/ethnicity. Conclusion: Participants favored quality information that rated the experience of care and outcome measures including indicators of access to services, standard treatments, and competence of the providers. Patient perspectives can inform the development of quality measures that are meaningful to consumers and can assist in the design of services that meet patients’ demographic and socioeconomic needs.Keywords
This publication has 26 references indexed in Scilit:
- Quality-of-Care Indicators for HIV/AIDSDisease Management and Health Outcomes, 2000
- Fourth Generation Evaluation of Health Services: Exploring a Methodology That Offers Equal Voice to Consumer and Professional StakeholdersQualitative Health Research, 1999
- The Care of HIV-Infected Adults in the United StatesNew England Journal of Medicine, 1998
- Perspective: Measuring What Matters To The PublicHealth Affairs, 1998
- Declining Morbidity and Mortality among Patients with Advanced Human Immunodeficiency Virus InfectionNew England Journal of Medicine, 1998
- Physicians' Experience with the Acquired Immunodeficiency Syndrome as a Factor in Patients' SurvivalNew England Journal of Medicine, 1996
- Access to Medical Care and Health-Related Quality of Life for Low-Income Persons with Symptomatic Human Immunodeficiency VirusPublished by Ovid Technologies (Wolters Kluwer Health) ,1995
- An index of symptoms for infection with human immunodeficiency virus: Reliability and validityJournal of Clinical Epidemiology, 1994
- Racial Differences in the Use of Drug Therapy for HIV Disease in an Urban CommunityNew England Journal of Medicine, 1994
- The Utilization of Qualitative and Quantitative Data for Health Education Program Planning, Implementation, and Evaluation: A Spiral ApproachHealth Education Quarterly, 1992