No Meaningful Apology for American Indian Unethical Research Abuses
- 23 October 2012
- journal article
- research article
- Published by Taylor & Francis Ltd in Ethics & Behavior
- Vol. 22 (6), 431-444
- https://doi.org/10.1080/10508422.2012.730788
Abstract
This article reviews the history of medical and research abuses experienced by American Indians since European colonization. This article examines the unethical research of American Indians/Alaska Natives in light of the Tuskegee Study of Untreated Syphilis in the Negro Male. Literature citations indicate that significant unethical research and medical care incidents occurred both before and after the Tuskegee Syphilis Study among American Indians/Alaska Natives. The majority of these unethical abuses were committed by the federal government and within the historical context of a long-term contentious relationship between American Indians and the federal government. Although President Clinton issued a highly visible public apology to the African American survivors of the Tuskegee syphilis experiment in 1997, American Indians have yet to experience such visible federal acknowledgment. To ensure ethical research in which benefits outweigh risks and findings are not value-laden or misrepresented, tribes have instituted their own Institutional Review Boards coupled with community-participatory activities.Keywords
This publication has 24 references indexed in Scilit:
- Genetic Research among the Havasupai: A Cautionary TaleThe AMA Journal of Ethic, 2011
- The Havasupai Indian Tribe Case — Lessons for Research Involving Stored Biologic SamplesThe New England Journal of Medicine, 2010
- Community-Based Participatory Research Contributions to Intervention Research: The Intersection of Science and Practice to Improve Health EquityAmerican Journal of Public Health, 2010
- Genetic Research in Native CommunitiesProgress in Community Health Partnerships: Research, Education, and Action, 2008
- Building and Maintaining Trust in a Community-Based Participatory Research PartnershipAmerican Journal of Public Health, 2008
- Recommendations for Conducting Successful Research With Native AmericansJournal of Cancer Education, 2005
- Multicultural psychology: Bringing together gender and ethnicity.Cultural Diversity & Ethnic Minority Psychology, 2002
- Repatriation: A Pawnee's PerspectiveAmerican Indian Quarterly, 1996
- Telling about Whites, Talking about Indians: Oppression, Resistance, and Contemporary American Indian IdentityCultural Anthropology, 1994
- Family Ecologies of Ethnic Minority ChildrenChild Development, 1990