The Structure of Everyday Self-Care Decision Making in Chronic Illness
- 1 December 2003
- journal article
- Published by SAGE Publications in Qualitative Health Research
- Vol. 13 (10), 1337-1352
- https://doi.org/10.1177/1049732303258039
Abstract
As health care reform strategists increasingly recognize the critically important potential of effective everyday self-care decision making for reducing the burden of illness and the strain on health service systems, wemust find ways to understand and support it. In this study, the authors investigate persons with expertise in self-care management of type 2 diabetes,HIV/AIDS, and multiple sclerosis to understand how everyday self-care decision making is learned and experienced. They used interview, think-aloud, and focus groups to construct an account of how persons affected by these chronic diseases make decisions in relation to the choices in their everyday lives and learn to manage the untoward effects of these conditions accordingto their unique contexts and values. The findings form a conceptual foundation for ongoing inquiry into this complex phenomenon and provide insights that might assist clinicians to understand more fully the responses and attitudes of those they serve.Keywords
This publication has 18 references indexed in Scilit:
- Expert decision making in relation to unanticipated blood glucose levelsResearch in Nursing & Health, 2000
- Towards a Canadian Model of Integrated HealthcareHealthcarePapers, 2000
- The Possibilities and Pitfalls of Doing a Secondary Analysis of a Qualitative Data SetQualitative Health Research, 1997
- Patient Decision Making: The Missing Ingredient in Compliance ResearchInternational Journal of Technology Assessment in Health Care, 1995
- Psychometric properties of two instruments to measure quality decision makingResearch in Nursing & Health, 1994
- Exploration of body listeningAdvances in Nursing Science, 1993
- An Experiential Model of Learning Diabetes Self-ManagementQualitative Health Research, 1993
- Self-Efficacy: Strategy for Enhancing Diabetes Self-CareThe Diabetes Educator, 1992
- Patterns of diet related self-care in diabetesSocial Science & Medicine (1982), 1991
- Conceptual, theoretical and methodological issues in self-care researchSocial Science & Medicine (1982), 1989