Research Consortium on Children with Chronic Conditions (RCCCC): A Vehicle for Interdisciplinary Collaborative Research
- 22 August 2009
- journal article
- Published by Springer Science and Business Media LLC in Maternal and Child Health Journal
- Vol. 14 (1), 9-19
- https://doi.org/10.1007/s10995-009-0484-z
Abstract
To describe the evolution, accomplishments, and limitations of a research consortium after 25 years of existence. A narrative historical account supplemented by data documenting citations to all group papers. In 1980 the Research Consortium on Children with Chronic Conditions was established. Since then, we have met 2–3 times a year to discuss issues related to research and policies for children with special health care needs. We describe the origin of the Consortium, its operation, and some of its accomplishments, as well as the difficulties it encountered. Our interactions helped promote and sustain research on an emerging topic and did so in an interdisciplinary manner. We include a citation analysis suggesting that group papers published by Consortium members are reasonably well cited by others. We believe our work has been of value in developing influencing research, clinical practice, and policy. This paper is intended to serve as a guide for others who believe that this type of interaction can do much to promote an emerging field. However, it also highlights some of the difficulties in forging and maintaining a productive, research-focused relationship over an extended period of time. The most important lesson learned is that a small group of committed individuals able to meet on a regular basis can accelerate movement in a new field. However, unless stable funding can be secured, maintaining a consortium is truly challenging.Keywords
This publication has 67 references indexed in Scilit:
- Cumulative Social Disadvantage and Child HealthPediatrics, 2006
- Methodological issues in using the child behavior checklist and its related instruments in clinical child psychology researchJournal of Clinical Child Psychology, 1995
- An Unexpected Success Story: Transition to Adulthood in Youth With Chronic Physical Health ConditionsJournal of Research on Adolescence, 1993
- Framework for identifying children who have chronic conditions: The case for a new definitionThe Journal of Pediatrics, 1993
- Cautions in Using the Child Behavior Checklist: Observations Based on Research About Children with a Chronic IllnessJournal of Pediatric Psychology, 1991
- Assessing Psychosocial Adjustment of Children with Chronic IllnessesJournal of Developmental & Behavioral Pediatrics, 1990
- What diagnosis does not tell: The case for a noncategorical approach to chronic illness in childhoodSocial Science & Medicine, 1989
- CONTROLLED TRIAL OF SOCIAL WORK IN CHILDHOOD CHRONIC ILLNESSThe Lancet, 1987
- Uncertainty and its relation to the psychological and social correlates of chronic illness in childrenSocial Science & Medicine, 1985
- DIVISION, DUPLICATION AND NEGLECT: PATTERNS OF CARE FOR CHILDREN WITH CHRONIC DISORDERSChild: Care, Health and Development, 1978