Medical follow‐up visits in adults 5–25 years after treatment for childhood acute leukaemia, lymphoma or Wilms’ tumour

Abstract

Aim: One aspect of organizing medical follow‐up for adult survivors of childhood cancer is to determine to what extent the former patient experiences a need for health services. In the present paper, we studied how the healthcare needs, both subjectively and objectively, were fulfilled for our former patients. Methods: 335 survivors over 18 y of age, with a follow‐up time of more than 5 y after completion of therapy, were sent a questionnaire probing their present use of health services. Results: The response rate was 73%. A majority (60%) of the survivors had no regular follow‐up visits, and 42% of these reported that they missed not having one. More than one third were thus far dissatisfied with the follow‐up programme. Only 3% of those who had regular follow‐ups found them “unnecessary”. Complaints subjectively related to their diseases or treatments were reported by 47%. Out of all responders, 34% did not miss having regular follow‐up visits. Neither perceived disease‐related complaints nor radiation therapy was a predictor for having a scheduled follow‐up visit. Conclusion: In the absence of a long‐term follow‐up programme, many survivors were not receiving proper medical healthcare, whether from their perspective or from a professional one.