Family Care Giving at Home as a Solitary Journey

Abstract

Home caregivers play an increasingly important role in providing health services for family members. Although many studies have been done to measure burden and related concepts, few studies have examined holistically the caregiving experiences. A grounded-theory design was used to better understand the caregiving experience from the perspective of caregivers. Seventeen families from a metropolitan intermountain western area comprised the sample. Recipients of care ranged in age from 14 months to 87 years. People with documented mental illness, dementia, or Alzheimer's disease were excluded from the sample. Interviews were conducted in participants' homes. Data were analyzed through constant comparative analysis. The central idea emerging from the data was caregiving as a solitary journey. Burden, responsibility, isolation, and commitment shaped the context of the journey.