When Women with Cystic Fibrosis Become Mothers: Psychosocial Impact and Adjustments
Open Access
- 23 November 2016
- journal article
- research article
- Published by Hindawi Limited in Pulmonary Medicine
- Vol. 2016, 1-11
- https://doi.org/10.1155/2016/9458980
Abstract
Advances in the treatment and life expectancy of cystic fibrosis (CF) patients mean that motherhood is now a realistic option for many women with CF. This qualitative study explored the psychosocial impact and adjustments made when women with CF become mothers. Women with CF () were recruited via an online forum and participated in semistructured telephone interviews about their experiences of becoming a mother. Transcriptions were analysed using Grounded Theory. Analysis revealed three core categories: (i) “Living with CF”: how becoming a mother impacted on health and treatment adherence, requiring a change in support from the CF team, (ii) “Becoming a Mother”: balancing issues common to new mothers with their CF, and (iii) “Pooling Personal Resources”: coping strategies in managing the dual demands of child and CF care. Participants experienced a variety of complex psychosocial processes. Most participants acknowledged an initial negative impact on CF care; however over time they reported successful adaptation to managing dual commitments and that adherence and motivation to stay well had improved. This study highlights the need for preconceptual psychosocial counselling andpostpartumadjustment to CF care.
Keywords
Funding Information
- Leeds Teaching Hospitals NHS Trust
This publication has 32 references indexed in Scilit:
- Parenting difficulties and resources: The perspectives of parents with multiple sclerosis and their partners.Rehabilitation Psychology, 2012
- Pregnancy outcomes in the current era of cystic fibrosis care: A 15-year experienceAustralian and New Zealand Journal of Obstetrics and Gynaecology, 2011
- HIV Disease Impact on Mothers: What They Miss During Their Children’s Developmental YearsJournal of Child and Family Studies, 2010
- Managing Motherhood: Strategies Used by New Mothers to Maintain Perceptions of WellnessHealth Care for Women International, 2009
- Decision‐making about pregnancy for women with cystic fibrosisBritish Journal of Health Psychology, 2009
- Fuzzy logic and decision-making in anaestheticsJournal of the Royal Society of Medicine, 2005
- The private struggle of mothers with asthma: a gender perspective on illness managementPatient Education and Counseling, 2004
- Being a Mother and Living with Asthma: An Exploratory Analysis of DiscourseJournal of Health Psychology, 2001
- Beginning reading with phonologyBritish Journal of Psychology, 1992
- The Hospital Anxiety and Depression ScaleActa Psychiatrica Scandinavica, 1983