“You hoped we would sleep walk into accepting the collection of our data”: controversies surrounding the UK care.data scheme and their wider relevance for biomedical research
Open Access
- 18 August 2015
- journal article
- scientific contribution
- Published by Springer Science and Business Media LLC in Medicine, Health Care and Philosophy
- Vol. 19 (2), 177-190
- https://doi.org/10.1007/s11019-015-9661-6
Abstract
No abstract availableKeywords
This publication has 24 references indexed in Scilit:
- DISCLOSURE OF CONFIDENTIAL PATIENT INFORMATION AND THE DUTY TO CONSULT: THE ROLE OF THE HEALTH AND SOCIAL CARE INFORMATION CENTREMedical Law Review, 2013
- HEALTH RESEARCH, DATA PROTECTION, AND THE PUBLIC INTEREST IN NOTIFICATIONMedical Law Review, 2011
- Scientific Research and the Public TrustScience and Engineering Ethics, 2010
- Balancing Access to Health Data and Privacy: A Review of the Issues and Approaches for the FutureHealth Services Research, 2010
- Community Engagement in Genetic Research: Results of the First Public Consultation for the Quebec CARTaGENE ProjectPublic Health Genomics, 2007
- Using thematic analysis in psychologyQualitative Research in Psychology, 2006
- Not worth the paper it's written on? Informed consent and biobank research in a Norwegian contextCritical Public Health, 2005
- Genetic research and donation of tissue samples to biobanks. What do potential sample donors in the Swedish general public think?European Journal of Public Health, 2005
- Data storage and DNA banking for biomedical research: informed consent, confidentiality, quality issues, ownership, return of benefits. A professional perspectiveEuropean Journal of Human Genetics, 2003
- ‘The public is too subjective’: public involvement at different levels of health-care decision makingSocial Science & Medicine (1982), 2002