What do community-dwelling people with dementia need? A survey of those who are known to care and welfare services
- 15 July 2009
- journal article
- research article
- Published by Cambridge University Press (CUP) in International Psychogeriatrics
- Vol. 21 (05), 949-965
- https://doi.org/10.1017/s1041610209990147
Abstract
Background: The aging society will bring an increase in the number of people with dementia living in the community. This will mean a greater demand on care and welfare services to deliver efficient and customized care, which requires a thorough understanding of subjective and objective care needs. This study aims to assess the needs of community-dwelling people with dementia as reported by themselves and by their informal carers. The study also aims to give insight into the service use and gaps between needs and the availability of services.Methods: 236 community-dwelling people with dementia and 322 informal carers were interviewed separately. (Un)met needs were assessed using the Camberwell Assessment of Needs for the Elderly (CANE).Results: Most unmet needs were experienced in the domains of memory, information, company, psychological distress and daytime activities. People with dementia reported fewer (unmet) needs than their carers. Type and severity of dementia, living situation and informal carer characteristics were related to the number of reported needs.Conclusions: This study showed a large number of unmet needs in dementia. Reasons for unmet needs are lack of knowledge about the existing service offer, a threshold to using services and insufficient services offer. These results provide a good starting point for improving community care for people with dementia.Keywords
This publication has 34 references indexed in Scilit:
- Validity and reliability of the Dutch version of the Camberwell Assessment of Need for the Elderly in community-dwelling people with dementiaInternational Psychogeriatrics, 2008
- Suffering from dementia – the patient's perspective: a review of the literatureInternational Psychogeriatrics, 2007
- Three Methods of Assessing Values for Advance Care PlanningJournal of Aging and Health, 2007
- The needs of older people with dementia in residential careInternational Journal of Geriatric Psychiatry, 2005
- The Emotional Impact of Psychiatric Symptoms in Dementia on Partner CaregiversAlzheimer Disease & Associated Disorders, 2005
- Why caregivers of people with dementia and memory loss don't use servicesInternational Journal of Geriatric Psychiatry, 2005
- Needs assessment in dementiaInternational Journal of Geriatric Psychiatry, 2005
- Psychological and social aspects in management of Alzheimer’s patients: an inquiry among caregiversNeurological Sciences, 2003
- Racial, Ethnic, and Cultural Differences in the Dementia Caregiving ExperienceThe Gerontologist, 2001
- Caregivers' Experience of Providing Care for Demented Persons Living at HomeScandinavian Journal of Primary Health Care, 1992