Disclosure of individual genetic data to research participants: the debate reconsidered
- 28 December 2010
- journal article
- review article
- Published by Elsevier BV in Trends in Genetics
- Vol. 27 (2), 41-47
- https://doi.org/10.1016/j.tig.2010.11.004
Abstract
No abstract availableKeywords
This publication has 72 references indexed in Scilit:
- What is a meaningful result? Disclosing the results of genomic research in autism to research participantsEuropean Journal of Human Genetics, 2010
- Ethical implications of the use of whole genome methods in medical researchEuropean Journal of Human Genetics, 2009
- Changing perspectives in biobank research: from individual rights to concerns about public health regarding the return of resultsEuropean Journal of Human Genetics, 2009
- Public Expectations for Return of Results from Large-Cohort Genetic ResearchAmerican Journal of Bioethics, 2008
- All in the family: Disclosure of “unwanted” information to an adolescent to benefit a relativeAmerican Journal of Medical Genetics Part A, 2008
- Research ethics and the challenge of whole-genome sequencingNature Reviews Genetics, 2008
- Understanding Incidental Findings in the Context of Genetics and GenomicsJournal of Law, Medicine & Ethics, 2008
- Managing Incidental Findings in Human Subjects Research: Analysis and RecommendationsJournal of Law, Medicine & Ethics, 2008
- Reporting genetic results in research studies: Summary and recommendations of an NHLBI working groupAmerican Journal of Medical Genetics Part A, 2006
- Disclosing Individual Results of Clinical ResearchJAMA, 2005