Re-identifiability of genomic data and the GDPR Assessing the re-identifiability of genomic data in light of the EU General Data Protection Regulation
- 31 May 2019
- journal article
- editorial
- Published by Springer Science and Business Media LLC in EMBO Reports
- Vol. 20 (6)
- https://doi.org/10.15252/embr.201948316
Abstract
The EU Data Protection Regulation has wide-ranging implications for research based on anonymized personal genomic and genetic data given the realistic risk of re-identification.Funding Information
- Fonds Wetenschappelijk Onderzoek
This publication has 8 references indexed in Scilit:
- Scrutinizing the EU General Data Protection Regulation How will new decentralized governance impact research?Science, 2018
- Are 'pseudonymised' data always personal data? Implications of the GDPR for administrative data research in the UKComputer Law & Security Review, 2018
- Rules for processing genetic data for research purposes in view of the new EU General Data Protection RegulationEuropean Journal of Human Genetics, 2017
- From the principles of genomic data sharing to the practices of data access committeesEMBO Molecular Medicine, 2015
- Routes for breaching and protecting genetic privacyNature Reviews Genetics, 2014
- Genomics and Privacy: Implications of the New Reality of Closed Data for the FieldPLoS Computational Biology, 2011
- Methods for the de-identification of electronic health records for genomic researchGenome Medicine, 2011
- Public Access to Genome-Wide Data: Five Views on Balancing Research with Privacy and ProtectionPLoS Genetics, 2009