Creating a data resource: what will it take to build a medical information commons?
Open Access
- 22 September 2017
- journal article
- other
- Published by Springer Science and Business Media LLC in Genome Medicine
- Vol. 9 (1), 84
- https://doi.org/10.1186/s13073-017-0476-3
Abstract
No abstract availableKeywords
Funding Information
- National Human Genome Research Institute (R01HG008918, K01HG008818, P20HG007243, U54HG007963, U01HG006500)
- National Human Genome Research Institute (U01HG006507)
- National Human Genome Research Institute (U01HG007307-02S2)
- National Patient-Centered Clinical Research Network (CC2-GA-2000-52)
- Robert Wood Johnson Foundation's Health Data Exploration Project
This publication has 11 references indexed in Scilit:
- Sharing Data to Build a Medical Information Commons: From Bermuda to the Global AllianceAnnual Review of Genomics and Human Genetics, 2016
- Community Engagement StudiosAcademic Medicine, 2015
- Dynamic consent: a patient interface for twenty-first century research networksEuropean Journal of Human Genetics, 2015
- Redefining genomic privacy: trust and empowerment.PLoS Biology, 2014
- Regulatory changes raise troubling questions for genomic testingGenetics in Medicine, 2014
- Pediatric Data Sharing in Genomic Research: Attitudes and Preferences of ParentsPEDIATRICS, 2014
- Engaging Research Participants and Building TrustGenetic Testing and Molecular Biomarkers, 2011
- To share or not to share: A randomized trial of consent for data sharing in genome researchGenetics in Medicine, 2011
- Electronic Consent Channels: Preserving Patient Privacy Without Handcuffing ResearchersScience Translational Medicine, 2011
- Post-publication sharing of data and toolsNature, 2009