What should be in a self-management programme for people with early dementia?
- 24 February 2012
- journal article
- research article
- Published by Informa UK Limited in Aging & Mental Health
- Vol. 16 (5), 576-583
- https://doi.org/10.1080/13607863.2011.651430
Abstract
Objectives: First, to use participative research methods to obtain views from people with dementia and carers about their experiences and the interventions that they consider can assist in facilitating independence and quality of life post diagnosis. Second, to use these views to identify priority topics for a potential self-management programme. Third, to explore the relevance of the identified topics with a consultation group of people with dementia and their carers, thus informing the creation of a draft self-management programme. Method: A series of individual and dyad interviews were conducted with people with dementia and family carers to explore their experiences post diagnosis and obtain views of how quality life can be maintained while living with dementia. A further group of people with dementia and carers then met over six successive weeks to explore and provide feedback on the topic areas generated out of the initial interviews and add to the content. Results: Data generated from the individual interviews identified a number of themes for a potential self-management group which were then validated through consultation. Optimum modes of delivery of a self-management programme were also indicated. Conclusions: A draft programme has been constructed building upon the framework of identified priorities. The process and outputs from the consultation also indicated the significant ramifications of such a programme for services.Keywords
This publication has 17 references indexed in Scilit:
- Self-managing versus self-management: reinvigorating the socio-political dimensions of self-managementChronic Illness, 2010
- Occupational Therapy Led Health Promotion for Older People: Feasibility of the Lifestyle Matters ProgrammeBritish Journal of Occupational Therapy, 2008
- Community based occupational therapy for patients with dementia and their care givers: randomised controlled trialBMJ, 2006
- How can occupational therapy improve the daily performance and communication of an older patient with dementia and his primary caregiver?Dementia, 2006
- Self-management for people with early dementiaDementia, 2006
- Dementia care in England and the social model of disabilityDementia, 2005
- Alzheimer's disease-associated disability: An ICF approachDisability and Rehabilitation, 2005
- Cognitive training and cognitive rehabilitation for people with early-stage Alzheimer's disease: A reviewNeuropsychological Rehabilitation, 2004
- Occupational therapy for independent-living older adults. A randomized controlled trialPublished by American Medical Association (AMA) ,1997
- What is participatory research?Social Science & Medicine, 1995