From Qualitative Work to Intervention Development in Pediatric Oncology Palliative Care Research
Open Access
- 30 April 2013
- journal article
- research article
- Published by SAGE Publications in Journal of Pediatric Oncology Nursing
- Vol. 30 (3), 153-160
- https://doi.org/10.1177/1043454213487434
Abstract
Qualitative methods can be particularly useful approaches to use with individuals who are experiencing a rare disease and thus who comprise a small sample (such as children with cancer) and are at points in care that few experience (such as end of life). This data-based methods article describes how findings from a qualitative study were used to guide and shape a pediatric oncology palliative care intervention. Qualitative data can lay a strong foundation for subsequent pilot intervention work by facilitating the development of an underlying study conceptualization, providing recruitment feasibility estimates, helping establish clinically meaningful inclusion criteria, establishing staff acceptability of a research intervention, and providing support for face validity of newly developed interventions. These benefits of preliminary qualitative research are described in the context of this study on legacy-making, which involves reports of children (7-12 years of age) living with advanced cancer and of their parent caregivers.Keywords
This publication has 20 references indexed in Scilit:
- National Survey of Children's Hospitals on Legacy-Making ActivitiesJournal of Palliative Medicine, 2012
- Living With Phenylketonuria From the Point of View of Children, Adolescents, and Young AdultsJournal of Developmental & Behavioral Pediatrics, 2012
- The experiences of children and their parents in paediatric diabetes services should inform the development of communication skills for healthcare staff (the DEPICTED Study)Diabetic Medicine, 2011
- Religious coping and the use of prayer in children with sickle cell diseasePediatric Blood & Cancer, 2011
- Qualitative methods to ensure acceptability of behavioral and social interventions to the target populationJournal of Public Health Dentistry, 2011
- Bereaved Parents’ and Siblings’ Reports of Legacies Created by Children With CancerJournal of Pediatric Oncology Nursing, 2009
- Evaluation of a pediatric palliative care educational workshop for oncology fellowsPediatric Blood & Cancer, 2007
- An evaluation of educational preparation for cancer and palliative care nursing for children and adolescents: Issues in the assessment of practice arising from this studyNurse Education Today, 2006
- Dignity Therapy: A Novel Psychotherapeutic Intervention for Patients Near the End of LifeJournal of Clinical Oncology, 2005
- A multi-stage approach to the coding of data from open-ended questionsNurse Researcher, 1996