Evaluation of a nurse-led haemophilia counselling service
- 26 July 2012
- journal article
- Published by Mark Allen Group in British Journal of Nursing
- Vol. 21 (14), 864-870
- https://doi.org/10.12968/bjon.2012.21.14.864
Abstract
Genetic counselling and testing for females with a family history of haemophilia has long been advocated. However, there is little research in regard to clients' satisfaction with the existing counselling models in haemophilia, and in particular with nurse-led clinics. The purpose of this study was to evaluate whether clients were satisfied with a nurse-led carrier testing clinic and counselling service. A retrospective quantitative study of clients' satisfaction and perceived knowledge was undertaken using an anonymous questionnaire. A sample of 42 women who had attended the clinic in the last 12 months was identified. The response rate for the study was 71% (n=30). Two thirds of the respondents were 35 years of age or younger, 93% had a family history of haemophilia and 56% were diagnosed as carriers. Perceived understanding and knowledge increased significantly between the first and second appointments (p<0.001). Overall, the study identified a high level of client satisfaction with the nurse-led carrier testing clinic and counselling service.Keywords
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