Who best to make the assessment? Professionals' and families' classifications of gross motor function in cerebral palsy are highly consistent
- 1 August 2006
- journal article
- Published by BMJ in Archives of Disease in Childhood
- Vol. 91 (8), 675-679
- https://doi.org/10.1136/adc.2005.090597
Abstract
To determine the reliability of family assessment for the Gross Motor Function Classification System (GMFCS) for children with cerebral palsy in the UK. Families of a complete geographically defined population of children with cerebral palsy between 6 and 12 years old were identified from the 4Child epidemiological database. Postal surveys were conducted with the families and any of the child's health professionals that were nominated by the families. Families of 129/314 eligible children took part in the study (41%). The indices of agreement and reliability between families and professionals were also equivalent to those observed between the professionals (kappa = 0.5, ICC > or = 0.9). Reliability coefficients were higher when more of the professionals classified children using direct observation rather than only reviewing their clinical records. Despite excellent reliability, families and professionals did not always agree exactly on a child's GMFCS level. Classifications may differ due to children's varying performance in different environments, in which case families will almost certainly know their children's ability in a broader range of settings. The indices of reliability of family assessment for the GMFCS meet the recommended criteria for use with individuals and groups, indicating that the method is suitable for use in research studies and clinical practice.Keywords
This publication has 13 references indexed in Scilit:
- Reliability of family report for the Gross Motor Function Classification SystemDevelopmental Medicine and Child Neurology, 2004
- Gross Motor Function Classification System: impact and utilityDevelopmental Medicine and Child Neurology, 2003
- Cerebral palsy: what parents and doctors want to knowBMJ, 2003
- Effect of environmental setting on mobility methods of children with cerebral palsyDevelopmental Medicine and Child Neurology, 2003
- Prognosis for Gross Motor Function in Cerebral PalsyJAMA, 2002
- The Gross Motor Function Classification System for Cerebral Palsy: a study of reliability and stability over timeDevelopmental Medicine and Child Neurology, 2000
- Evaluating patient-based outcome measures for use in clinical trials.Health Technology Assessment, 1998
- Recording Motor Defects of Children with Cerebral PalsyDevelopmental Medicine and Child Neurology, 1985
- The Measurement of Observer Agreement for Categorical DataBiometrics, 1977
- Functional Ambulation in Patients with MyelomeningoceleThe Journal of Bone & Joint Surgery, 1973