Mothers of children and adolescents with intellectual disability: social and economic situation, mental health status, and the self‐assessed social and psychological impact of the child's difficulties
- 22 May 2003
- journal article
- research article
- Published by Wiley in Journal of Intellectual Disability Research
- Vol. 47 (4-5), 385-399
- https://doi.org/10.1046/j.1365-2788.2003.00498.x
Abstract
Background Few large‐scale studies with well‐constructed samples have compared the socio‐economic circumstances and social impact of raising a child with intellectual disability (ID). The aims of the present paper were to: (1) compare the socio‐economic situation of mothers raising a child with ID to that of mothers of non‐ID children; (2) assess the contribution of raising a child with ID to negative psychological outcomes for mothers; and (3) identify variables associated with negative psychological outcomes among mothers of children with ID. Methods The 1999 Office for National Statistics survey, Mental Health of Children and Adolescents in Great Britain, 1999, collected information on a multistage stratified random sample of 10 438 children between 5 and 15 years of age across 475 postal code sectors in England, Scotland and Wales. Secondary analysis was undertaken of the social and economic circumstances, and stress reported by 245 mothers of sampled children with ID and a comparison group of 9 481 mothers of sampled children who did not have ID. Results The results indicate that: (1) families supporting a child with ID were significantly economically disadvantaged when compared with families supporting a child who did not have ID; (2) when compared with mothers of sampled children who did not have ID, mothers of sampled children with ID reported that their child's difficulties resulted in greater social and psychological impact; (3) having a child with ID marginally reduced the odds of mothers screening positive for having mental health problems (once all other variables were taken into account); and (4) among mothers of children with ID, mental health problems were associated with the child's difficulties having a greater social impact, having a boy, the child experiencing more than one potentially stressful life event, poverty, receipt of means‐tested welfare benefits and ‘unhealthy’ family functioning. Conclusions These results highlight the importance of combating poverty among children with ID and their families, and the need to develop more complex models of understanding and intervention.Keywords
This publication has 34 references indexed in Scilit:
- Current perspectives on family research in mental retardationCurrent Opinion in Psychiatry, 2001
- Supporting positive sibling relationships during childhoodMental Retardation and Developmental Disabilities Research Reviews, 2001
- Differentiated Coping Strategies in Families with Children or Adults with Intellectual Disabilities: the Relevance of Gender, Family Composition and the Life SpanJournal of Applied Research in Intellectual Disabilities, 2000
- Maternal Employment and Family Responsibilities: the Perspectives of Mothers of Children with Intellectual DisabilitiesJournal of Applied Research in Intellectual Disabilities, 2000
- Prevalence of psychiatric diagnoses in children with mental retardation: data from a population‐based studyDevelopmental Medicine and Child Neurology, 2000
- The Extended Version of the Strengths and Difficulties Questionnaire as a Guide to Child Psychiatric Caseness and Consequent BurdenJournal of Child Psychology and Psychiatry, 1999
- Demography of Family HouseholdsAmerican Journal on Mental Retardation, 1998
- Grandparents of Children with Disabilities: a reviewInternational Journal of Disability, Development and Education, 1997
- Factors Related to Stress and Satisfaction with Life in Families of Children with Down's SyndromeJournal of Child Psychology and Psychiatry, 1991
- Stress and coping in mothers caring for a child with severe learning difficulties: A test of Lazarus' transactional model of copingJournal of Community & Applied Social Psychology, 1991