My child is not my carer: mothers with physical disabilities and the well‐being of children
- 1 May 2004
- journal article
- research article
- Published by Informa UK Limited in Disability & Society
- Vol. 19 (3), 209-223
- https://doi.org/10.1080/0968759042000204185
Abstract
This article describes a qualitative study on the experiences of mothers with physical disabilities. Two focus groups were held for mothers with young children and mothers of older children. Eight mothers also participated in in‐depth interviews. All have a physical impairment, most are wheelchair users. This article focuses on (a) participants' attempts to ensure the physical and psychological well‐being of their children; (b) their child‐rearing philosophies and practices; and (c) the overall nature of the parent‐child relationship. A range of parenting practices, experiences and relationships was reported. The variability of experiences notwithstanding, participants' life stories demonstrate a strong commitment to children, actions to ensure their care and well‐being, and attempts to shield them from any burden related to the maternal disability. Whilst challenges and barriers were candidly reported, by and large, they do not overshadow the joy and fulfilment that these women derive from motherhood.Keywords
This publication has 22 references indexed in Scilit:
- Impairment and Disability: Constructing an Ethics of Care That Promotes Human RightsHypatia, 2001
- A Child's Growing Up with a Parent Who Has Multiple Sclerosis: Theories and experiencesDisability & Society, 1999
- The Baby and the Bath Water: Disabled Women and Motherhood in Social ContextSociology of Health & Illness, 1997
- Disability rights and the denial of young carersCritical Social Policy, 1996
- Young Carers: Challenging the facts and politics of research into children and caringDisability & Society, 1996
- Punishing Children for Caring: The Hidden Cost of Young CarersChildren & Society, 1993
- Family Response to Mother's Chronic IllnessWestern Journal of Nursing Research, 1991
- Mothers with chronic illness: A predicament of social constructionHealth Care for Women International, 1990
- The family's functioning with chronic illness in the mother: The spouse's perspectiveSocial Science & Medicine, 1989
- Family environment as perceived by children with a chronically ill parentJournal of Chronic Diseases, 1985