“She makes me feel that I'm not alone”: Linkage to Care Specialists provide social support to people living with HIV
- 9 April 2015
- journal article
- research article
- Published by Taylor & Francis Ltd in AIDS Care
- Vol. 27 (9), 1104-1107
- https://doi.org/10.1080/09540121.2015.1028882
Abstract
Wisconsin's Linkage to Care intervention incorporates elements of individually tailored patient navigation and case management designed to increase linkage and retention in HIV-related medical care. It is delivered by Linkage to Care Specialists in HIV medical clinics and community-based agencies. Researchers interviewed a diverse sample of clients to conduct preliminary evaluation of the pilot phase of this intervention. The participants' relationships with their Specialists emerged as a major unifying theme of the data. Comfortable and close relationships with Specialists served as motivation to adhere to medical care, mitigated negative feelings associated with HIV-related stigma, and resulted in increased comfort with medical care and positive health outcomes including engagement in care and undetectable viral load. As a result of the Specialists' support, many participants were reluctant to transition out of the Linkage to Care program. The positive effects demonstrated by Specialists are balanced against the costs of small caseloads that are potentially not feasible within traditional case management models. Future interventions to increase medical care engagement, among HIV+ individuals at risk of lack of engagement, should develop strategies to “personalize” the patient experiences within health care and psychosocial services delivery systems, as well as screening tools to triage clients into different levels of personal service provision intensity based on need and desire.Keywords
Funding Information
- Health Resources and Services Administration (H97HA22698)
- National Institute of Mental Health (P30MH052776)
This publication has 13 references indexed in Scilit:
- Protective and risk factors associated with stigma in a population of older adults living with HIV in Ontario, CanadaAIDS Care, 2013
- Support, Stigma, Health, Coping, and Quality of Life in Older Gay Men With HIVJournal of the Association of Nurses in AIDS Care, 2013
- An Examination of the Relationships Among Gender, Health Status, Social Support, and HIV-Related StigmaJournal of the Association of Nurses in AIDS Care, 2010
- Learning and Improving in Quality Improvement Collaboratives: Which Collaborative Features Do Participants Value Most?Health Services Research, 2009
- “Getting Me Back on Track”: The Role of Outreach Interventions in Engaging and Retaining People Living with HIV/AIDS in Medical CareAIDS Patient Care and STDs, 2007
- Social Support and Health: A Review of Physiological Processes Potentially Underlying Links to Disease OutcomesJournal of Behavioral Medicine, 2006
- Social Support and Maladaptive Coping as Predictors of the Change in Physical Health Symptoms among Persons Living with HIV/AIDSAIDS Patient Care and STDs, 2005
- Efficacy of a brief case management intervention to link recently diagnosed HIV-infected persons to careAIDS, 2005
- Health-Related Quality of Life Among Men with HIV Infection: Effects of Social Support, Coping, and DepressionAIDS Patient Care and STDs, 2004
- Social Support, Positive States of Mind, and HIV Treatment Adherence in Men and Women Living With HIV/AIDS.Health Psychology, 2004