Privacy Versus Public Health: The Impact of Current Confidentiality Rules
- 1 March 2010
- journal article
- Published by American Public Health Association in American Journal of Public Health
- Vol. 100 (3), 407-412
- https://doi.org/10.2105/ajph.2009.166249
Abstract
Public health research and practice often have been facilitated through the evaluation and study of population-based data collected by local, state, and federal governments. However, recent concerns about identify theft, confidentiality, and patient privacy have led to increasingly restrictive policies on data access, often preventing researchers from using these valuable data. We believe that these restrictions, and the research impeded or precluded by their implementation and enforcement, have had a significant negative impact on important public health research. Members of the public health community should challenge these policies through their professional societies and by lobbying legislators and health officials to advocate for changes that establish a more appropriate balance between privacy concerns and the protection of public health.Keywords
This publication has 44 references indexed in Scilit:
- Potential health effects associated with residential proximity to freeways and primary roads: review of scientific literature, 1999-2006.2008
- Increased Rate of Hospitalization for Diabetes and Residential Proximity of Hazardous Waste SitesEnvironmental Health Perspectives, 2007
- A Summary of Recent Findings on Birth Outcomes and Developmental Effects of Prenatal ETS, PAH, and Pesticide ExposuresNeuroToxicology, 2005
- Ambient Air Pollution and Pregnancy Outcomes: A Review of the LiteratureEnvironmental Health Perspectives, 2005
- Particulate Air Pollution and Fetal HealthEpidemiology, 2004
- Syndromic Surveillance and Bioterrorism-related EpidemicsEmerging Infectious Diseases, 2003
- Making environmental data accessible for public health aims. The Massachusetts Environmental Database project.1995
- Air pollution and daily mortality: Associations with particulates and acid aerosolsEnvironmental Research, 1992
- A microcomputer-based vital records data base with interactive graphic assessment for states and localities.American Journal of Public Health, 1989
- The epidemiologist's lament.American Journal of Public Health, 1981