Examining the Perspectives of Family Members Involved in the Delivery of Palliative Care at Home
- 1 March 2003
- journal article
- research article
- Published by SAGE Publications in Journal of Palliative Care
- Vol. 19 (1), 27-35
- https://doi.org/10.1177/082585970301900106
Abstract
This ethnographic study examined the social context of home-based palliative caregiving. Data were composed of observation field notes, interviews, and textual documents, and were analyzed using constant comparative methods. Findings show that home-based palliative caregiving resulted in life-enriching experiences for many caregivers. However, assumptions about dying at home and health care reforms resulted in some caregivers feeling “pressured” to provide home care, and consequently, left them feeling their obligations to care were exploited by the health care system. Shifts toward providing care closer to home not only changed caregivers, but also changed the home setting where palliative care was provided. Findings indicate a need for interventions designed to improve support for caregivers at home, and to explore how assumptions influence and sometimes drive the provision of home health care.Keywords
This publication has 33 references indexed in Scilit:
- Depression and grief reactions in hospice caregivers: from pre-death to 1 year afterwardsJournal of Affective Disorders, 2002
- Lifestyle interference and emotional distress in family caregivers of advanced cancer patientsCancer, 2002
- Location of Death in CanadaEvaluation & the Health Professions, 2001
- Home Caregivers of the Person With Advanced CancerCancer Nursing, 2001
- Family Caregiving in Hospice:The Hospice Journal, 2001
- Understanding Economic and Other Burdens of Terminal Illness: The Experience of Patients and Their CaregiversAnnals of Internal Medicine, 2000
- A Profile of Bereaved Caregivers following Provision of Terminal CareJournal of Palliative Care, 1999
- Identifying the concerns of informal carers in palliative carePalliative Medicine, 1999
- Home Care Clients, Providers and CostsCanadian Journal of Public Health, 1998
- Canada: Status of cancer pain and palliative careJournal of Pain and Symptom Management, 1993