Communicating Genetic and Genomic Information: Health Literacy and Numeracy Considerations
- 20 April 2010
- journal article
- Published by S. Karger AG in Public Health Genomics
- Vol. 14 (4-5), 279-289
- https://doi.org/10.1159/000294191
Abstract
Genomic research is transforming our understanding of the role of genes in health and disease. These advances, and their application to common diseases that affect large segments of the general population, suggest that researchers and practitioners in public health genomics will increasingly be called upon to translate genomic information to individuals with varying levels of health literacy and numeracy. This paper discusses the current state of research regarding public understanding of genetics and genomics, the influence of health literacy and numeracy on genetic communication, and behavioral responses to genetic and genomic information. The existing research suggests that members of the general public have some familiarity with genetic and genomic terms but have gaps in understanding of underlying concepts. Findings from the limited research base to date indicate that health literacy affects understanding of print and oral communications about genetic and genomic information. Numeracy is also likely to be an important predictor of being able to understand and apply this information, although little research has been conducted in this area to date. In addition, although some research has examined behavior change in response to the receipt of information about genetic risk for familial disorders and genomic susceptibility to common, complex diseases, the effects of health literacy and numeracy on these responses have not been examined. Potential areas in which additional research is needed are identified and practical suggestions for presenting numeric risk information are outlined. Public health genomics researchers and practitioners are uniquely positioned to engage in research that explores how different audiences react to and use genomic risk information.Keywords
This publication has 62 references indexed in Scilit:
- Patient Responses to Genetic Information: Studies of Patients With Hereditary Cancer Syndromes Identify Issues for Use of Genetic Testing in Nephrology PracticeSeminars in Nephrology, 2010
- Understanding the Role of Numeracy in Health: Proposed Theoretical Framework and Practical InsightsHealth Education & Behavior, 2009
- Anchoring-and-Adjustment Bias in Communication of Disease RiskMedical Decision Making, 2008
- Putting science over supposition in the arena of personalized genomicsNature Genetics, 2008
- Genetics and Smoking Cessation: Improving Outcomes in Smokers at RiskAmerican Journal of Preventive Medicine, 2007
- Rethinking Health Numeracy: A Multidisciplinary Literature ReviewJournal of the American Medical Informatics Association, 2007
- Assessing oral literacy demand in genetic counseling dialogue: Preliminary test of a conceptual frameworkSocial Science & Medicine (1982), 2007
- The Role of Genetics in the Provision of Essential Public Health ServicesAmerican Journal of Public Health, 2007
- Research and Practice Opportunities at the Intersection of Health Education, Health Behavior, and GenomicsHealth Education & Behavior, 2005
- Interpretation of Genetic Risk Feedback Among African American Smokers With Low Socioeconomic Status.Health Psychology, 2004