Community Care for People With Disability: Blurring Boundaries Between Formal and Informal Caregivers
- 1 February 2003
- journal article
- case report
- Published by SAGE Publications in Qualitative Health Research
- Vol. 13 (2), 207-226
- https://doi.org/10.1177/1049732302239599
Abstract
Health care for individuals with disability is increasingly shifting from institutional settings to the "community," with assistance by those in the formal sector. In this article, the authors examine 5 case studies illustrating interactions and relationships between people with disability and their caregivers, using qualitative data collected as part of a community study of disability conducted in a medium-sized city in the northeastern United States. Employing the task specificity framework, they explore the implications of using either formal care providers to fill needs that are more typically met by family and friends or family caregivers to provide care that is best provided by the formal sector. Although our narratives illustrate the negative implications of mismatched care substitution, we conclude that the framework is less applicable to emerging systems of community care.Keywords
This publication has 33 references indexed in Scilit:
- Family Caregivers and In-Home Respite OptionsJournal of Gerontological Social Work, 1999
- IntroductionAustralian Feminist Studies, 1998
- The Prevalence and Consequences of Unmet NeedMedical Care, 1997
- A Task-specific Typology of Intergenerational Family Structure in Later LifeThe Gerontologist, 1993
- Home Care Quality and the Home Care Worker: Beyond Quality Assurance as UsualThe Gerontologist, 1993
- Relationships Between Home Care Clients and Their Workers: Implications for Quality of CareThe Gerontologist, 1991
- Integrating Intensely Emotional Methods with Psychodynamic, Gestalt, Cognitive, and Behavioral Therapeutic Elements Part Two:Psychotherapy in Private Practice, 1989
- The Health Visitor as Mother's Friend: A Woman's place in public health, 1900–14Social History of Medicine, 1988
- Complementary Roles for Formal and Informal Support Groups: A Study of Nursing Homes and Mortality RatesThe Journal of Applied Behavioral Science, 1985
- Neighbors and FriendsResearch on Aging, 1979