Attitudes Toward Genetic Testing in a German Population
- 1 December 2009
- journal article
- research article
- Published by Mary Ann Liebert Inc in Genetic Testing and Molecular Biomarkers
- Vol. 13 (6), 743-750
- https://doi.org/10.1089/gtmb.2008.0154
Abstract
Aims: Population-representative or population-based studies on attitudes toward molecular genetic testing have so far been conducted in the United States, Great Britain, the Netherlands, and Finland. In 2001 our group conducted a representative survey for a German population among a total of 2076 respondents aged 14–95 years. The questionnaire administered consisted of 13 items covering the advantages and disadvantages of molecular genetic testing for hereditary diseases. We conducted a factor analysis to explore potential sub-dimensions of attitudes, and describe here the influence of sociodemographic variables on these sub-dimensions and how the attitudes of the Germans compare to those of the Finns. Results: Our factor analysis of the results showed three dimensions: approval, disapproval, and concern regarding genetic testing. In the German sample we found an overall positive attitude toward genetic testing. There was no influence of sex, but there were marked differences regarding age, educational backgrounds, and religious affiliation. Finns are more in favor of genetic testing and disapprove less than Germans. We can summarize that Germans have a markedly more skeptical view than Finns. In our opinion this could well be understood in the context of German history. We assume that this created a less conducive environment for the population to form a clearer attitude toward genetic testing as compared to the Finns. Conclusions: In the light of our results there is certainly a need for more information and education. Further, it would in our opinion be most useful if the German development regarding attitudes to genetic testing, especially after reunification, is studied longitudinally to provide a better understanding of possible developments.Keywords
This publication has 28 references indexed in Scilit:
- Attitudes Toward Genetic Testing in Patients At Risk for HNPCC/FAP and the German PopulationGenetic Testing, 2002
- Gesundheit durch Gentests?Zeitschrift für Gesundheitspsychologie, 2002
- Psychosocial factors associated with the public's willingness to pay for genetic testing for cancer risk: a structural equations model.Health Education Research, 2001
- Parental Attitudes toward Genetic Testing for Pediatric DeafnessAmerican Journal of Human Genetics, 2000
- Likelihood of Undergoing Genetic Testing for Cancer Risk: A Population-Based StudyPreventive Medicine, 2000
- Attitudes, Knowledge, and Risk Perceptions of Women With Breast and/or Ovarian Cancer Considering Testing for BRCA1 and BRCA2Journal of Clinical Oncology, 1999
- Acceptance of genetic testing in a general population: age, education and gender differencesPatient Education and Counseling, 1997
- Genetic Counseling Practices in Germany: A Comparison Between East German and West German GeneticistsJournal of Genetic Counseling, 1997
- Interest in Learning of Personal Genetic Risk for Cancer: A General Population SurveyPreventive Medicine, 1996
- Psychiatry, German Society, and the Nazi ‘Euthanasia’ ProgrammeSocial History of Medicine, 1994