Longitudinal study of perceived negative impact in African American and Caucasian mothers of children with autism spectrum disorder
- 2 July 2012
- journal article
- research article
- Published by SAGE Publications in Autism
- Vol. 17 (4), 405-417
- https://doi.org/10.1177/1362361311435155
Abstract
The purpose of this study was to examine the stability of mothers’ perceptions of the negative impact of having a child with ASD in a sample of African American and Caucasian families as their children transitioned to early adolescence. Participants were mothers and children participating in an ongoing longitudinal study of children referred for diagnosis of ASD at age two. Analyses included data from two time points, when child participants were approximately 9 and 14 years old. Linear mixed model analyses were used to examine the relationship between the primary outcome variable, mothers’ perceived negative impact across time, and hypothesized predictors. Negative impact increased significantly from late childhood to into adolescence. However, African American mothers with lower education reported significantly lower levels of perceived negative impact at both time points. Findings show that for some families, the transition to adolescence is a period in which mothers experience increased amounts of negative impact and highlight the importance of examining the influence of socioeconomic variables. Furthermore, data suggest that there may be cultural differences mediating the relationship between maternal education, ethnicity, and perceived negative impact. Implications for the importance of including families from varying levels of socioeconomic status in ASD research are discussed.Keywords
This publication has 32 references indexed in Scilit:
- Changes in Maladaptive Behaviors From Midchildhood to Young Adulthood in Autism Spectrum DisorderAmerican Journal on Intellectual and Developmental Disabilities, 2011
- Trajectories of emotional well-being in mothers of adolescents and adults with autism.Developmental Psychology, 2011
- Brief Report: Under-Representation of African Americans in Autism Genetic Research: A Rationale for Inclusion of Subjects Representing Diverse Family StructuresJournal of Autism and Developmental Disorders, 2009
- Autism in African American Families: Clinical‐phenotypic findingsAmerican Journal Of Medical Genetics Part B-Neuropsychiatric Genetics, 2007
- Predictors of perceived negative impact in mothers of children with autism spectrum disorder.American Journal on Mental Retardation, 2007
- Direct Health Care Costs for Children with Pervasive Developmental Disorders: 1996–2002Administration and Policy in Mental Health and Mental Health Services Research, 2006
- Syndrome specificity and behavioural disorders in young adults with intellectual disability: cultural differences in family impactJournal of Intellectual Disability Research, 2005
- Effect of Race on Cultural Justifications for CaregivingThe Journals of Gerontology, Series B: Psychological Sciences and Social Sciences, 2005
- Psychological Well-Being and Coping in Mothers of Youths With Autism, Down Syndrome, orFragile X SyndromeAmerican Journal on Mental Retardation, 2004
- Impact of Children's Mental Health Problems on FamiliesJournal of Emotional and Behavioral Disorders, 1997