The Events in Care Screening Questionnaire (ECSQ): A New Tool to Identify Needs and Concerns of People with HIV/AIDS
- 1 May 2008
- journal article
- research article
- Published by Mary Ann Liebert Inc in AIDS Patient Care and STDs
- Vol. 22 (5), 381-393
- https://doi.org/10.1089/apc.2007.0105
Abstract
The purpose of this paper is to present validation data on the Events in Care Screening Questionnaire (ECSQ), which was designed to identify the needs and concerns of people living with HIV/AIDS (PLWHA) in nine specific domains: adherence to medical instructions; medical problems; specialty and inpatient hospital care; preventive health care and screening and behavioral health; sexual risk behavior; family planning; psychological symptoms; substance use; and life circumstances and demands. The ECSQ is the anchor for a more comprehensive measure called “The Dynamics of Care,” and was administered in the context of a longitudinal study to evaluate New York State's HIV Special Needs Plan (HIV SNP), a Medicaid managed care model for PLWHA. Participants in the study, which began in March 2003 and closed recruitment in January 2007, were NYC PLWHA who were enrolled in either a Medicaid HIV SNP or Fee-For-Service plan. Participants were recruited through HIV SNP enrollment lists, direct on-site recruitment, and fliers. The specific event domains covered in the ECSQ were selected based on the purpose of the HIV SNP and the literature describing the needs and challenges that PLWHA face. Analyses are based on data from 628 study respondents over two times points. Results suggest that the concerns identified by PLWHA were largely consistent with their health care situation, heath status, risk behavior, and personal characteristics. Findings presented here lend support for the construct validity of the ECSQ and demonstrate its value as a starting point for inquiring more fully about the experiences of patients and improving the care they receive.Keywords
This publication has 56 references indexed in Scilit:
- The Cost of Care for Patients with HIV from the Provider Economic PerspectiveAIDS Patient Care and STDs, 2006
- The experience of fatigue for adults living with HIVJournal of Clinical Nursing, 2006
- Human immunodeficiency virus infection and fertility care in the United Kingdom: demand and supplyFertility and Sterility, 2006
- Incidence and risk factors for the occurrence of non‐AIDS‐defining cancers among human immunodeficiency virus‐infected individualsCancer, 2005
- How Trauma, Recent Stressful Events, and PTSD Affect Functional Health Status and Health Utilization in HIV-Infected Patients in the SouthPsychosomatic Medicine, 2005
- Service Utilization, Service Barriers, and Gender among HIV-Positive Consumers in Primary CareAIDS Patient Care and STDs, 2003
- Adherence to HAART: Why Is It So Difficult?Archives of Internal Medicine, 2002
- Synthesis of IFN-γ by CD8+ T Cells Is Preserved in HIV-Infected Women with HPV-Related Cervical Squamous Intraepithelial LesionsGynecologic Oncology, 1999
- Early Impairment of Systolic and Diastolic Function in Asymptomatic HIV-Positive Patients: A Multicenter Echocardiographic and Echo–Doppler StudyAIDS Research and Human Retroviruses, 1996
- The MOS 36-ltem Short-Form Health Survey (SF-36)Medical Care, 1992