Place of death of adolescents and young adults with cancer: First study in a French population
- 13 February 2009
- journal article
- Published by Cambridge University Press (CUP) in Palliative & Supportive Care
- Vol. 7 (1), 27-35
- https://doi.org/10.1017/s1478951509000054
Abstract
Objective: To improve the palliative care and more effectively meet the needs of young patients and their families at the end of life, the authors investigated the place of death of adolescents and young adults treated in their institution and identified some of the factors influencing the choice of place of death. Methods: The parents and/or partners of adolescents and young adults (15 to 25 years old) who died at Institut Curie (cancer center) between 2000 and 2003 were contacted. Twenty-one families agreed to participate in the interview between October 2005 and April 2006. Analysis of the interviews comprised a descriptive part and a thematic part. Results: Nineteen out of 21 (90%) families declared that they did not really choose their child's place of death due to lack of time. However, all families said that they preferred the hospital. No family attended a bereavement group after their child's death and only 3 families (14%) consulted a mental health care professional. Thematic analysis showed that representations and beliefs concerning life and death at least partly determined the family's capacity to discuss the place of death with their child. Significance of results: Although progress has been made over recent years in France, there is still considerable room for improvement of palliative care to more effectively meet the needs of young patients and their families at the end of life.Keywords
This publication has 20 references indexed in Scilit:
- Factors influencing preferences for place of terminal care and of death among cancer patients and their families in KoreaSupportive Care in Cancer, 2005
- Cancer-Related Deaths in Children and AdolescentsJournal of Palliative Medicine, 2005
- Talking about Death with Children Who Have Severe Malignant DiseaseNew England Journal of Medicine, 2004
- Family caregiver satisfaction with care at end of life: Report from the cultural variations study (CVAS)American Journal of Hospice and Palliative Medicine®, 2004
- Predictors of place of death for Japanese patients with advanced‐stage malignant disease in home care settings: A nationwide surveyCancer, 2004
- Family Perspectives on End-of-Life Care at the Last Place of CareJAMA, 2004
- Children and young people who die from cancer: epidemiology and place of death in England (1995-9)BMJ, 2003
- Where Do Children With Complex Chronic Conditions Die? Patterns in Washington State, 1980–1998Pediatrics, 2002
- Grounded Theory Method: Philosophical Perspectives, Paradigm of Inquiry, and PostmodernismQualitative Health Research, 1996
- ‘Discovering’ chronic illness: Using grounded theorySocial Science & Medicine, 1990